https://www.omf.ngo/2018/05/25/omf-funded-research-overview-2018/ OMF has just posted a list of their funded research. Lots going on. I expect as a group we'll have different interests. I am watching the red blood cell lack of pliability with considerable interest. EDIT: title should read May not March. Mod-please can you advise on correcting it. Title corrected.
I'm curious to know how often completely new devices have to be fabricated to diagnose illnesses. Presumably a totally new piece of kit would be years from being useful (from lab testing, replication, and validation through to getting health services and insurance companies to buy it/approve it). Is it common for an illness to need a new invention, or is diagnosis more usually a case of looking for a new characteristic signal via some existing method (blood, scans, clinical history and signs, etc)?
The thing that interests me the most are the diagnostic markers ...we desperately need something to start biomedical research advocacy proper and to put the final nail in the bps coffin. Answering the infection vs immune activation question will also help focus research. I just hope that we see something published soon.
This interests me, too. A doctor once told me that my constant dizziness, which didn't seem related to OI, might be caused by constriction of the tiny blood vessels in the inner ear. It seems plausible that "stiff" blood cells might produce the same effect by a different mechanism. I wonder what body-wide effects would result from reduction in oxygen that was limited to only the most narrow of blood vessels.
