OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

"Open Medicine Foundation is sponsoring a three-day focused scientific meeting with a growing group of excellent scientists with diverse expertise prior to the September 29th Community Symposium on the Molecular Basis of ME/CFS at Stanford University.

Over 50 scientists from all over the world will gather at Stanford from September 26 to September 28 to present their latest findings and ideas. These presentations will be interspersed with in-depth discussions, brainstorming of new ideas and next steps, and developing targeted strategies to find answers. Old collaborations will be intensified; new collaborations launched.

The working group meeting will emphasize collaboration, open sharing of unpublished data and constructive feedback and critiques in a friendly environment working towards a common goal. The meeting will continue during coffee breaks, lunches, and dinners for three full days.

OMF is pleased to fund this unique platform for open collaboration and open sharing of data and ideas, unprecedented in ME/CFS research. Our ultimate goal is to accelerate research finding answers and solutions to this dreadful disease.

We will post the working group agenda daily on our website and social media during these meetings.

If you haven't already, please register for the free Community Symposium Livestream, click here. "

eta:
https://www.omf.ngo/2018/09/19/working-group-meeting/
note: this webpage is available in several languages

 

https://twitter.com/user/status/1044982805703192577

https://twitter.com/user/status/1044981679666995200

 

https://twitter.com/user/status/1045013317146705920

https://twitter.com/user/status/1045016436698112000

https://twitter.com/user/status/1045022912766332928

 

https://twitter.com/user/status/1045033622519115777

 

Can't embed, foto album of the meeting on OMF Facebook page:
https://www.facebook.com/pg/OpenMedicineFoundation/photos/?tab=album&album_id=1638477229590025

 

This is al great but when will actual trials and treatments start?

 

The problem is that we are currently discovering all the "different faces" of ME/CFS but not their cause.

 

Sounds like @JaimeS is there?

https://twitter.com/user/status/1045359957300760576

 

Yes!

 

https://twitter.com/user/status/1045471411542872064

https://twitter.com/user/status/1045476104452984832


All Tweets with hashtag #mecfs18: https://twitter.com/hashtag/mecfs18?f=tweets&vertical=default&src=hash

 

https://twitter.com/user/status/1045656611035975680

 

Today's session starting up:

https://twitter.com/user/status/1045710103729471488

 

Here's the hashtag search again - just click on 'Latest' and you see the latest tweets. You don't have to be registered with Twitter to see all this stuff.

https://twitter.com/hashtag/mecfs18?f=tweets&vertical=default&src=hash

 

Some more pictures (more in the foto album on the OMF Facebook page):

 

I had a look on the FB Page and was trying to look for "clues" from the presentation slides.

-The Presentation title slide by Alan Light looks quite interesting. Title : "Mitochondrial, immune and autoimmune gene mutations synergize as risk factors for ME/CFS". Definitely something to look at IMHO.

-The presentation slide by Rob Phair is "Metabolic TrapS" as opposed to "Metabolic Trap". So we are looking at many traps as opposed to one? (I don't want to suggest that this is necessarily a bad thing)

 

@JaimeS just tweeted that there are, confusingly, two hashtags on the go - here's a search on the other one:

https://twitter.com/hashtag/MECFS2018?src=hash

 

https://twitter.com/user/status/1045352819111354368

 

Janet has also been posting here:

https://forums.phoenixrising.me/ind...f-me-cfs-at-stanford-discussion-thread.61590/