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Piezogenic papules in Ehlers-Danlos and ME/CFS?

Discussion in 'General and other signs and symptoms' started by Hoopoe, Jul 24, 2019.

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  1. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Hoopoe, Jul 24, 2019
    #1
    MEMarge, Sarah94, rvallee and 4 others like this.
  2. Andy

    Andy Committee Member

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    Yeah, me too.
     
    Andy, Jul 24, 2019
    #2
    MEMarge, rvallee, DokaGirl and 1 other person like this.
  3. Trish

    Trish Moderator Staff Member

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    Apparently they are very common and usually painless and not a problem.
    Most prevalence figures I've seen on a quick search suggest more than half the population have them.

    https://www.dermatologyadvisor.com/...genic-pedal-papules-piezogenic-wrist-papules/
     
    Trish, Jul 24, 2019
    #3
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  4. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Many patients on that twitter thread are saying they have these as well. Do we all have EDS or is that just a nonspecific sign?

    Edit: Trish was faster.
     
    Hoopoe, Jul 24, 2019
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  5. Trish

    Trish Moderator Staff Member

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    Trish, Jul 24, 2019
    #5
    Annamaria, DokaGirl and Andy like this.
  6. NelliePledge

    NelliePledge Moderator Staff Member

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    Why don’t people check out the general prevalence before including something in criteria it seems such a waste of time.
     
    NelliePledge, Jul 24, 2019
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  7. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I just checked - yes, I have some nice ones.

    I am pretty sure these are entirely normal. (I hope so.)
     
    Jonathan Edwards, Jul 24, 2019
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  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    It may be significant that in the Peter Rowe paper that seems to have raised this hare about EDS in the first place piezogenic papules were about the only thing apart from hypermobility that made it look as if the patients had anything specific. If piezogenic papules occur in most of us then that looks pretty unhelpful.
     
    Jonathan Edwards, Jul 24, 2019
    #8
    Hutan, TrixieStix, Annamaria and 7 others like this.

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