Post-acute COVID-19 condition (PACC): a perspective on collaborative Australian research imperatives and primary health models of care 2022 Tippett

[Andy]

Abstract

Post-acute COVID-19 condition (PACC) – also known as long COVID – is a serious and growing problem in primary health. This letter describes the work of the Victorian Post-Acute COVID-19 Study (VPACS) group, which comprises clinician researchers, basic scientists and consumers. Two key priorities for PACC research in Australia are identified and discussed: (1) the establishment of COVID-19 patient registries and data linkage; and (2) the consolidation of clinical guidelines. Collaboration between consumers, researchers, clinicians and institutions must be the foundation of PACC management in Australia. Ongoing research should focus on large, multicentre controlled studies, the protective effect of vaccination, differential impacts from variants, pathobiological underpinnings, disease mechanisms to avoid severe and enduring impacts on the Australian economy. The lived experience of people with PACC is also essential to enable the design and implementation of effective models of care. VPACS brings a diverse group of people together to work on a shared vision of holistic and high-quality care, and collectively maximise their impact on outcomes for patients and the broader community.

Open access, https://www.publish.csiro.au/py/Fulltext/PY22009

 

[rvallee]

Victoria’s Clinical Leadership Expert Group (convened by Safer Care Victoria to respond to the pandemic) identified the provision of clinician (Department of Health 2021) and consumer facing guidance (Wark 2020) and collaboration between research groups as priorities in early 2021. The Victorian Post-Acute COVID-19 Study (VPACS) group formed in February 2021 to share latest developments in this rapidly evolving field. The aims of VPACS include improved data linkage, promotion of evidence-based practice, sharing clinical experience and enabling ongoing research. During 20 meetings in 2021, VPACS identified two key imperatives for Australian PACC research and models of care (MoC).

They've had 20 meetings in 2021 starting from February. The outcome basically amounts to suggesting to do something, and maybe that'll help. It's no better informed today than in February 2021, when we knew a lot and they knew nothing.

So they formed a bureaucratic process that took 2 years to suggest that maybe someone should do the basic normal stuff done in medicine but that the medical profession has categorically refused to do for reasons that include 19th century pseudoscience being widely used in healthcare these days.

Data sharing is not applicable as no new data were generated or analysed during this study.

I think that the history of medicine being so defined by happenstance, by one lone dude working at something and accidentally discovering something useful, has broke how medicine approaches solving problems. They seem to think that the first steps have to be discovered accidentally, or something like that.

As ridiculous as buzzword-filled business consultants charging millions to recommend putting ping-pong tables to boost employee morale. No wonder there is no progress happening, there is barely any actual work happening. And all this while it's as if real life doesn't matter, the patients don't even matter. It's all about burden and the singular perspective of healthcare facilities.

The failure is so total, the people failing can't even see they're failing. But they get paid so whatever I guess.