Proof of concept of prehabilitation: a combination of education and behavioural change, to promote physical activity in people with FM 2023 McVeigh

Discussion in ''Conditions related to ME/CFS' news and research' started by Andy, Jul 16, 2023.

  1. Andy

    Andy Committee Member

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    Objectives

    To establish proof of concept of a prehabilitation intervention, a combination of education and behavioural change, preceding a physical activity programme in people with fibromyalgia (FM).

    Settings

    Open-label, feasibility clinical trial.

    Participants

    Eleven people with FM (10 women).

    Interventions

    The prehabilitation intervention consisted of 4 weeks, 1 weekly session (~1 to 1.5 hours), aimed to increase self-efficacy and understand why and how to engage in a gentle and self-paced physical activity programme (6 weeks of walking with telephone support).

    Primary and secondary outcome measures

    Primary outcome was the acceptability and credibility of the intervention by means of the Credibility/Expectancy Questionnaire. Secondary outcomes comprised scales to measure FM severity, specific symptoms and sedentary behaviour. An exit interview was conducted to identify the strengths and weaknesses and barriers to the intervention.

    Results

    One participant dropped out due to finding the walking programme excessively stressful. Participants expected the intervention would improve their symptoms by 22%–38% but resulted in 5%–26% improvements. Participants would be confident in recommending this intervention to a friend who experiences similar problems. The interviews suggested that the fluctuation of symptoms should be considered as an outcome and that the prehabilitation intervention should accomodate these fluctuation. Additional suggestions were to incorporate initial interviews (patient-centred approach), to tailor the programmes to individuals’ priorities and to offer a variety of physical activity programmes to improve motivation.

    Conclusions

    This feasibility study demonstrated that our novel approach is acceptable to people with FM. Future interventions should pay attention to flexibility, symptoms fluctuation and patients support.

    Open access, https://bmjopen.bmj.com/content/13/7/e070609
     
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  2. Trish

    Trish Moderator Staff Member

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    Is it just me, or is it an enormous waste of money and patients time to spend up to 6 hours spread over 4 weeks talking to patients about how to engage in an upcoming physical activity program?

    Here's what it involves:
    Does that really take 6 hours? I reckon half an hour going over a one page guide would be sufficient.
     
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  3. obeat

    obeat Senior Member (Voting Rights)

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    The therapist is being paid byt the hour so it's definitely worthwhile for them
     
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  4. shak8

    shak8 Senior Member (Voting Rights)

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    Pre-habilitation is an intervention of exercise and education done before surgery or invasive medical treatment.

    Here, it seems to be before a walking program.

    At least the researchers learned from 11 subjects that "symptoms fluctuate" and that in subsequent studies they would need to offer a wider range of activities to aide in motivation. (I think the Spanish "walking" researchers will be sad about this development.)
     
    Last edited: Jul 16, 2023
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  5. NelliePledge

    NelliePledge Moderator Staff Member

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    Yeah symptom fluctuation should be an outcome
    And
    The actual perceived improvement being half that expected by the patients


    Is definitely telling them useful information that may be new to these researchers -
    Need to understand negative impact, does any perceived benefit outweigh the impact on symptoms

    At least they reported these points honestly, will they be given proper consideration or dismissed?
     
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  6. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    :thumbup:
     
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  7. Creekside

    Creekside Senior Member (Voting Rights)

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    Proof of concept: if we come up with some appropriate pseudoscientific babble, we can manipulate the study to provide results that look good!
     
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  8. Sean

    Sean Moderator Staff Member

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    If it only took a single half-hour consult and a one page guide, they would be out of a job in a month.
     
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  9. Sean

    Sean Moderator Staff Member

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    How many decades and how many studies has it taken them to arrive at this conclusion? The same one patients have been telling them for decades, for free.
     
    Last edited: Jul 18, 2023
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