Shining a light on chronic fatigue syndrome, a little understood disease among doctors - The Inquirer Jennie Spotila

[Cheshire]

I recently went to a new doctor. He looked over my chart: "Chronic fatigue syndrome," he read, and then he glanced up at me. "You don't look tired," he quipped. "There, I made it go away."

I've been sick for 24 years, and I get comments like this a lot.

I've grown accustomed to comments like this because my disease — myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — is a debilitating neuroimmune disease that is poorly understood by most of the medical community.

http://www2.philly.com/philly/healt...yalgic-encephalomyelitis-unrest-20181109.html

 

[Ravn]

Claiming that exercise will improve ME/CFS is like telling a diabetic that sugar will cure them.

Must remember to try that quote. Probably more effective than my usual strategy of launching into a lengthy explanation of aerobic and anaerobic and cellular energy etc etc which always results in the listener's eyes glazing over within 30 seconds

Nice and clear article.

Edited: spelling

 

[ahimsa]

This is a good article. So much good information and so well written.

Sharing my tweet about it (it was hard to pick just one quote - may tweet again using another quote):

https://twitter.com/ahimsa_pdx/status/1060945889915625472