SMILE trial data to be released

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by JohnTheJack, Mar 12, 2019.

Tags:
  1. JohnTheJack

    JohnTheJack Moderator Staff Member

    Messages:
    4,789
    EA/2018/ 0142
    John Peters v the ICO and University of Bristol.
    The First Tier Tribunal finds for the Appellant. And orders the release of the SMILE trial data. Unanimous decision. Date: 11 March 2019 Promulgated: 12 March 2019

    Decision here:
    https://www.dropbox.com/s/1vms66ic4vh1tpp/014 100319 Final Decision EA.2018.0142.pdf?dl=0
     
  2. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,675
    Congratulations!
    upload_2019-3-12_13-37-5.jpeg
    Thanks a lot for your tenacity.
     
  3. JohnTheJack

    JohnTheJack Moderator Staff Member

    Messages:
    4,789
    Thanks, Cheshire.
     
  4. Sean

    Sean Moderator Staff Member

    Messages:
    8,064
    Location:
    Australia
  5. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

    Messages:
    1,554
    Location:
    UK
    Great result, John. And great that it was a unanimous decision.

    Thanks for all your hard work.
     
  6. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    2,199
    Location:
    UK
    I've just read the decision (only skimmed through the discussion) - well done! :balloons::balloons: The idea that a 'motivated intruder' could publicly identify children who participated in the trial from the data wasn't accepted by the judge. I think that's helpful for other FOI requests for data that might be made so that's great. Thanks for your persistence @JohnTheJack .
     
    sea, ladycatlover, Inara and 30 others like this.
  7. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    Brilliant @JohnTheJack :) :). Not least for it helping to set a more sane precedent for future FOIs. Superb.
     
    sea, ladycatlover, Dolphin and 21 others like this.
  8. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,769
    amazing news ! a heartfelt thanks from all parents
     
    sea, ladycatlover, pteropus and 15 others like this.
  9. Sean

    Sean Moderator Staff Member

    Messages:
    8,064
    Location:
    Australia
    Is this level of appeal the final on facts, and they can only appeal on points of law from here?
     
    sea, ladycatlover, Joel and 11 others like this.
  10. large donner

    large donner Guest

    Messages:
    1,214
    How long before Clare Gerada is tweeting out some spin on this claiming British justice has lost its way.
     
  11. Trish

    Trish Moderator Staff Member

    Messages:
    55,414
    Location:
    UK
    Thank you for your excellent work on this, @JohnTheJack.
     
  12. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    2,581
    Thank you @JohnTheJack. It’s hard work to persevere so diligently. I am enormously grateful to you for doing this.
     
    sea, ladycatlover, pteropus and 16 others like this.
  13. Daisymay

    Daisymay Senior Member (Voting Rights)

    Messages:
    686
    Excellent, thanks so very much JtJ for all your efforts, I'm sure it takes a lot out of you x
     
  14. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,837
    Location:
    UK West Midlands
    Belting result :thumbup:
     
    ladycatlover, Dolphin, Andy and 10 others like this.
  15. inox

    inox Senior Member (Voting Rights)

    Messages:
    539
    Location:
    Norway
    Yay! Well done and amazing job, thank you! :thumbup:
     
    ladycatlover, Dolphin, Andy and 9 others like this.
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,922
    Location:
    UK
    this news was my icing on the cake of today:D

    splendid work @JohnTheJack
     
    ladycatlover, Dolphin, Andy and 11 others like this.
  17. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,660
    Location:
    Canada
    I have no idea how that's supposed to work. Then what? Plenty of participants to some of those trials have spoken out. That's the end of it. They speak out, we appreciate the contribution to the conversation and add it to the pile of evidence. That's what happens when participants in those trials are identified. They're anecdotes, not much more can be done, the trial data is much more useful.

    It's a really bad idea to make strawman arguments like that. It works within the circlejerk, but it makes them look very unprofessional to independent observers. They may as well have been arguing that alien invasion was a likely consequence of releasing the data for all that that argument was grounded in reality.
     
  18. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    15,175
    Location:
    London, UK
    Well done JTJ.
     
    sea, ladycatlover, Obermann and 14 others like this.
  19. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,837
    Location:
    UK West Midlands
    At least they can’t claim E Crawley has retired & the data isn’t available
     
  20. obeat

    obeat Senior Member (Voting Rights)

    Messages:
    698
    @JohnTheJack . Well done. Now you need to prepare for MAGENTA?!!!!
     
    ladycatlover, Andy, andypants and 4 others like this.

Share This Page