Open Stanford Neuroinflammation Study

Enrolling now, Stanford:
"
This study is interested in ME/CFS patients who would classify themselves in the severe category (mostly bedbound, could be housebound).

Dr. Montoya and Dr. Michelle James, a neuroradiologist at Stanford University, aim to investigate the inflammatory process in the brain of ME/CFS patients.

They believe that this study could lead to improvements in our understanding of the disease and help with targeting treatment."

https://www.meaction.net/2018/10/05...on-study/?mc_cid=8d5f862430&mc_eid=c1fdea04b1

 

People are telling me the link to signing up for the study doesn't work on here, which may be an issue on Stanford's page; remember that you can always use the email contact info they provided!

 

Thanks for posting, @Sly Saint. I realise you've posted this in the Recruitment subforum, but I wonder if it would be good to edit the title to something like 'Stanford neuroinflammation study recruiting patients' so that those of us who navigate via the 'New posts' button realise what it's about?

Might be worth mentioning in the OP that only patients who can get to Stanford for a brain scan can take part (if that's correct, @JaimeS?).

 

Merged thread

Advertised on their Facebook page.

Code:

https://www.facebook.com/StanfordCFSInitiative/posts/941545066033066

 

I’m really pleased to see them looking at the severe for this because it seems obvious to me that people still in work aren’t going to be having severe neuro/brain inflammation but what about the incapacitated who’s brains are mush. Obviously they can only access upper end severe for studies like this but that’s still reasonable and the accommodation of travelling to homes for tests initially is very encouraging. Anyone with severe ME knows the difficulty of getting hospitals to come to you so I think it shows the understanding at the top levels. I’m thrilled to see this type of research and that Stanford has the money to do it.

 

Update from the James Lab on Twitter
https://twitter.com/user/status/1249807268092104704

https://twitter.com/user/status/1249941057204174848

 

https://twitter.com/user/status/1250231989522681857

 

Further to the posts above, Prof James has been awarded $196k worth of funding.

https://projectreporter.nih.gov/project_info_description.cfm?aid=10107645&icde=31258613

https://twitter.com/user/status/1346531517342781441

 

Prof James was also awarded an R01 grant in 2020 to look at PET for imaging immune cells in MS
"Imaging B Cells In The Brain And Beyond: Developing An Immuno-Pet Toolbox To Improve Understanding And Treatment Of Multiple Sclerosis"
https://projectreporter.nih.gov/project_info_description.cfm?aid=10051272&map=y

This work seems to fit nicely with Jarred Youngers studies to look at immune cells in the brain in various diseases.