Studies on mild, moderate and severe ME/CFS

[ME/CFS Skeptic]

Hi,

I'm looking for papers that separated ME/CFS patients into different grades of severity with some epidemiological data on each of the groups.

For example, if you were to divide the entire ME/CFS population into mild, moderate, severe and very severe, what percentage would be given to each category?

Thanks in advance

 

[InitialConditions]

Not read this, but it might meet your needs: https://bmjopen.bmj.com/content/8/9/e020775

 

[ME/CFS Skeptic]

Not read this, but it might meet your needs: https://bmjopen.bmj.com/content/8/9/e020775

Thanks!

 

[ME/CFS Skeptic]

Does anyone know any patient surveys that have responses for the categories: mild/moderate/severe?

 

[DokaGirl]

You might want to ask the Solve ME/CFS group.

There was a CFIDS of America survey in about 2009 that asked questions along these lines. Although, I can't recall precisely.

For some maybe unfamiliar with CFIDS of America, it came before Solve ME/CFS.

 

[NelliePledge]

https://www.actionforme.org.uk/uploads/images/2020/02/Big-Survey-Impact-of-ME.pdf

I don’t know if AFME would have responses to questions by severity might be worth asking

 

[Ravn]

Does anyone know any patient surveys that have responses for the categories: mild/moderate/severe?

Did we ever see any results from this survey? I don't know if the questions asked in it were relevant to your question.
https://www.s4me.info/threads/2021-pan-europe-me-patient-survey-emea.22819/

You previously linked this Norwegian survey which had some questions re severity: https://www.s4me.info/threads/the-c...ents-in-norway-2021-schei-and-angelsen.19529/

 

[Wyva]

Did we ever see any results from this survey? I don't know if the questions asked in it were relevant to your question.
https://www.s4me.info/threads/2021-pan-europe-me-patient-survey-emea.22819/

Not yet I believe. I'm a member of the survey's Facebook group and they are also supposed to send the data for individual countries to the people/group representing those countries, which in the case of Hungary is me and I haven't seen or received anything yet.

 

[Ebb Tide]

Not sure if any help but the study in the first post of the thread linked below compares characteristics of housebound/non-housebound with cohorts from US, UK and Norway.

https://www.s4me.info/threads/trici...d-me-patients-study-correctly-described.1572/

 

[Sly Saint]

see
https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/

 

[trudeschei]

Hi,

I'm looking for papers that separated ME/CFS patients into different grades of severity with some epidemiological data on each of the groups.

For example, if you were to divide the entire ME/CFS population into mild, moderate, severe and very severe, what percentage would be given to each category?

Thanks in advance

Norwegian survey from 2020
https://www.me-foreningen.no/wp-con...-on-the-course-of-illness-English-summary.pdf