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Survey: From diagnosis to today: Understanding the patient journey in neurological conditions

Discussion in 'Other health news and research' started by Andy, Dec 8, 2019.

  1. Andy

    Andy Committee Member

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    Probably not a recommendation, I haven't taken the survey.
    https://reading.onlinesurveys.ac.uk/neurological-conditions-2019_na
     
    Andy, Dec 8, 2019
    #1
  2. rvallee

    rvallee Senior Member (Voting Rights)

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    The survey asks to list the diagnosis so likely ME respondents would just be discarded.
     
    rvallee, Dec 8, 2019
    #2
  3. Trish

    Trish Moderator Staff Member

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    This makes me think it is a study intended only for a selected sample of patients with neurological conditions, perhaps from a particular clinic to assess their services.
     
    Trish, Dec 8, 2019
    #3
    Snow Leopard and Andy like this.
  4. Andy

    Andy Committee Member

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    Possibly, but I discovered it in an email update from the Neurological Alliance, where they were promoting it.
     
    Andy, Dec 8, 2019
    #4
    Trish likes this.
  5. Trish

    Trish Moderator Staff Member

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    Ah, OK. I guess that means it's intended to be widely shared.
    Anyway researchers should know that if you put any survey on the internet lots of people will spread the word.

    I sometimes wonder if the few people who fill in ME surveys about the effect of doing GET and say it helped are CBT/GET therapists and their friends trying to influence the outcome.
     
    Trish, Dec 8, 2019
    #5
    alktipping, rvallee and Andy like this.

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