Mij
Senior Member (Voting Rights)
Total COMPASS-31 scores and its secretomotor, vasomotor, and pupillomotor component scores were similar for adolescents and adults (data not shown). However, mean orthostatic intolerance was greater for adolescents than adults (29.9 [SD, 6.8] v 27.6 [SD. 7.7]; P = 0.026); mean bladder (1.3 [SD, 1.7] v 1.8 [SD, 2.1]; P = 0.012) and gastrointestinal symptom scores (8.9 [SD, 4.8] v 10.5 [SD, 4.4]; P = 0.007) were less severe for adolescents than adults. The mean EQ-5D-5L scores were similar for adolescents and adults (data not shown).
The overall mean health-related quality of life utility score was 0.591 (SD, 0.240), the mean visual analogue scale score was 45.9 (SD, 20.8). “Usual activities” (347 people, 69.4%) and “pain and discomfort” (318 people, 63.6%) were the EQ-5D-5L subdomains in which moderate to severe problems were most frequent.
This is the first Australian study to report data from a patient registry of people with physician-confirmed POTS. Our key findings include long delays between symptom onset and diagnosis despite frequent health care interactions, and reduced social engagement, high unemployment, reduced ability to undertake usual activities, and low quality of life for people with POTS, despite their relatively young age.
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The overall mean health-related quality of life utility score was 0.591 (SD, 0.240), the mean visual analogue scale score was 45.9 (SD, 20.8). “Usual activities” (347 people, 69.4%) and “pain and discomfort” (318 people, 63.6%) were the EQ-5D-5L subdomains in which moderate to severe problems were most frequent.
This is the first Australian study to report data from a patient registry of people with physician-confirmed POTS. Our key findings include long delays between symptom onset and diagnosis despite frequent health care interactions, and reduced social engagement, high unemployment, reduced ability to undertake usual activities, and low quality of life for people with POTS, despite their relatively young age.
LINK
