UK: News from ME Research UK

ME Research UK – enewsletter September 2024

https://www.meresearch.org.uk/me-research-uk-enewsletter-september-2024/

 

ME Research UK is delighted to announce that we have awarded funding to Assoc. Prof. Leighton Barnden at Griffith University in Australia for a new study aiming to track changes in the structure and function of the brain over time in people with ME/CFS. https://bit.ly/barnden067

 

ME Research UK:

The Autumn 2024 issue of Breakthrough magazine is now available online. This issue includes a look at two newly funded research projects on microclots and neurocognitive impairment, an article from Cort Johnson on severe ME/CFS, an interview with Tina Katsaros from La Trobe University, and much more.

Read it here:
https://www.meresearch.org.uk/research/breakthrough-magazine/

 

From ME Research UK:

https://www.meresearch.org.uk/prevalence-of-me-cfs-a-growing-problem/


Prevalence of ME/CFS: A growing problem
28 October 2024


Determining the prevalence of any disease may be thought of as a simple matter, underpinned by certainties and sound science. However, in ME/CFS prevalence figures are not so straightforward – confounded as they are by differing disease definitions, data collection methods, and even when and where a study was carried out.

In a series of articles, ME Research UK will examine exactly what is meant by prevalence, what figures over the years have been suggested, and, most importantly, the limitations of the studies that do exist which highlight just how complex the question of prevalence actually is.

Such a simple question, but one which research has yet to provide a universally acceptable answer as ME Research UK shows:

1. What is prevalence and why is it important?

https://www.meresearch.org.uk/what-is-prevalence-and-why-is-it-important/

2 What the existing research says about the prevalence of ME/CFS, alongside the research’s strengths and limitations.
https://www.meresearch.org.uk/?p=20365

3. Why existing estimates for the prevalence of ME/CFS may no longer apply to the UK population today.
https://www.meresearch.org.uk/?p=20403

4. A summary, and recommendations for the next steps.
https://www.meresearch.org.uk/?p=20418

 

ME Research UK – enewsletter October 2024 https://www.meresearch.org.uk/me-research-uk-enewsletter-october-2024/

 

ME/CFS in children and young people – World Children’s Day 20th November 2024


ME Research UK:

World Children’s Day is UNICEF’s global day of action for children marking the adoption of the Convention on the Rights of the Child on November 20. One of the key aims of the day is to highlight critical issues affecting children’s lives – regrettably, this includes ME/CFS.

Read more about ME/CFS in children and young people here: https://bit.ly/4hY2xXw

Find out more about World Children’s Day here: https://www.unicef.org/world-childrens-day#WorldChildrensDay

 

ME Research UK – enewsletter November 2024

https://www.meresearch.org.uk/me-research-uk-enewsletter-november-2024/

 

ME Research UK:

ME Research UK's charity year ended on 31st October, and we want to take this opportunity to review what the last year has meant for us, focusing on our three key activities of Investing, Informing and Influencing. Thank you so much for your continued support, which allows us to continue this work, as we pursue our vision to end the suffering caused by ME/CFS.

https://bit.ly/3VmbD6W

 

ME Research UK:

Researchers based at Cardiff University – alongside those with lived experience of ME/CFS have published two papers investigating how ME/CFS impacts quality of life – the degree to which an individual is healthy, comfortable, able to complete the tasks of daily living, and to enjoy life events.

Read about what the team found here: https://tinyurl.com/3wb4y9s8

 

ME Research UK:

2025 marks a milestone in the history of ME Research UK, as this year the charity marks 25 years since its foundation.

As an organisation, our dearest wish is that sustained major funding into ME/CFS becomes available, leading to a cure or effective treatment.

We're not celebrating 25 years of work, but marking the commitment of researchers and supporters and what they have achieved.

This year, through themed initiatives, the charity will raise the profile of the disease and highlight research efforts.

Read more: https://bit.ly/42dqtRu

 

ME Research UK:

ME Research UK's January (first e-newsletter of 2025!) was sent out today. Want to join the mailing list? It is easy to do - https://shorturl.at/Bvqeu

Alternatively, read the e-newsletter on our website - https://bit.ly/3EjR59u #MECFS #MEresearch #Myalgicencephalomyelitis