UK: Reading Well books (formerly Books on Prescription): should books based on the deconditioning model of ME/CFS still be included?

https://reading-well.org.uk/

this was the list of books for LTC in 2020
https://tra-resources.s3.amazonaws.com/uploads/entries/document/2311/RWLTC_booklist_overview.pdf

which included Chalder and Burgess' book
"Overcoming Chronic Fatigue"

and advertises itself as
A Books on Prescription Title

Code:

https://books.google.co.uk/books/about/Overcoming_Chronic_Fatigue.html?id=gaCeBAAAQBAJ&source=kp_cover&redir_esc=y

and was until very recently recommended reading on most NHS websites.

who decides which books are on the list?

@adambeyoncelowe

 

Not all of these books can be summarized as "Go to the gym " books, but certainly some of them can.

 

I've changed the link from Amazon (which just turned into a general link for Amazon rather than the actual link to the book reviews).
Google books (the 'new link' makes quite a big chunk of the beginning of the book available to read.)

Basically its the usual 'boom and bust'/deconditioning stuff and this;

 

and this

given the changes in the guidelines this book should not be officially sanctioned reading by the health service.

eta: it also perpetuates the ME/CFS = chronic fatigue issue.

 

still recommended by:
Royal Free
https://www.royalfree.nhs.uk/services/fatigue-service

South Tees NHS

https://www.southtees.nhs.uk/servic...hronic-fatigue-syndrome-me/patient-resources/

approved iapt reading
https://www.ppn.nhs.uk/resources/ap...tient-materials-for-long-term-conditions/file

Northern Care Alliance NHS
https://www.northerncarealliance.nh...rome?q=/our-services/chronic-fatigue-syndrome

there are many more.

 

The book is also included on the Reading Well book list for Mental health as well as

there is also this book

• Katharine Rimes and Trudie Chalder (2015). Overcoming Chronic fatigue in young people: A cognitive behavioural self-help guide.
  

which is recommended reading by various children CF services eg Sheffield

I don't know about the contents but suspect it is more of the same.

 

Grim.
What a terrible shame.

 

The clinics probably draw up their own lists? I can imagine someone did a list for BACME years ago and made sure all their mates were on it. Then it got passed around until it became the standard.

 

Yeah, that seems to be how it’s done,

 

No that's not how it's done.

See this info sheet
https://tra-resources.s3.amazonaws.com/uploads/entries/document/4503/Reading_Well_fact_sheet.pdf

(linked to here : https://reading-well.org.uk/resources/4503)

 

"stakeholder consultation... expert advice... professional recommendations" - sounds quite a lot like what Adam was suggesting?

Can Charles Shepherd write to Reading Well to point out that their current list of titles includes "self-help interventions" which are not "recommended within National Institute for Health and Care Excellence (NICE) guidelines"?

Overcoming chronic fatigue: a self-help guide using cognitive behavioural techniques seems like a straightforward contradiction of the guidelines in the title alone: "Explain... that it [CBT] may help them [patients] manage their symptoms but it is not curative."