Uk based He seems to practice privately at Brakespear Clinic in Hemel Hempstead. His recent papers centre on Nitro and Oxidative stress theory and seem logical and well written (to my layman eyes) . But Is he reputable? But the Brakespear clinic (or its founder) seems to have a bit of a checkered history according to ME Pedia so not sure if it's a good/safe place to visit? Though perhaps tbf that doesn't reflect on him given nhs institutions don't support biomedical approaches. Not that I'm swimming in options either. Breaks pear apparently offer IV IG which interests me. And seem relatively transparent. I'm severe and continuing to decline despite pacing and mind-body attempts so seeking a reputable UK biomedical consultant (or US who'll take UK patients by zoom though I imagine they're too swamped with domestic LC patients). Tia
Dont know much about him but he has written a book, which i skimmed, some yrs back & gave it away to charity shop, which means i didnt think that much of his ideas... but i cant really remember why. I *think* it might have been because he was very into EPA supplementation, but i cant remember. Chronic Fatigue Syndrome: A Natural Way to Treat M.E.: Amazon.co.uk: Puri, Basant K., Professor Basant K Puri: 9781905140008: Books Although it was written in 2004 so his ideas may well have changed since then Re IVIG you might find this thread interesting Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Brownlie and Speight | Science for ME (s4me.info) Sorry you are deteriorating that sucks Hope you're able to find someone to help you
Thanks Jem, I didn't know about the book. Many Thanks. Funnily enough that ivig post popped up on my Facebook feed this morning. I was originally interested as someone in USA reported a very good improvement anecdotally from it way back but from that article it's shown a mixed response so I probably need to read up much more on immunology. Antivirals and also LDN interest me too. Oh and potentially FMT. And an immunological perspective in general as in the back of my mind there's a little niggle of a question as whether I've actually got some obscure immune disease, not having stabilised after 4 years. Not to say that ME case descriptions don't fit me well. I'm viral both in original onset (probably ebv /glandular fever 20 years ago but extremely mild) and viral progression 4 years ago (probable viral meningitis post surgery)
I don't know if this is new or not https://www.breakspearmedical.com/treatments/chronic-fatigue-syndrome/ however their info sheet has not been updated since the new guidelines (it seems to be from 2017) https://www.breakspearmedical.com/resources/
In answer to the original poster, no, this is not reputable. It is straightforward misrepresentation of reality - i.e. pseudoscience. The appearance of various scientific sounding words means nothing. Nobody has found any evidence of a cytokine shift in ME/CFS of the sort claimed. It is a pity that this sort of bullshit is still legal in the UK. The only contact I ever had with Breakspear when I was practicing rheumatology was when patients explained that they had spent tens of thousands of pounds on worthless treatments. From what I can see from the blurb they specialise in phoney care of arthritis and ME.