US: The Untreated Epidemic: Understanding and Treating Long Covid and ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Sly Saint · Oct 26, 2023

Website for Physician Assistants

The Untreated Epidemic: Understanding and Treating Long Covid and ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome - IN PERSON and VIRTUAL ACCESS; FREE CME

Webinar/Online Monday, November 6, 2023 at 12:00pm ET - 4:00pm ET

Info
Topic
Diagnosing and Treating Long Covid and ME/CFS; Enhancing Patient/Provider Relations; Research Update; Overcoming Systems Challenges

Credits Offered
This event offers 3.5 CME credits to attendees.
Accreditation Info: ACCME, AMA PRA Category 1 Credits (Dartmouth Health).

https://www.mypanetwork.com/physici...e-in-person-and-virtual-access-free-cme#!info

(I have no idea who is doing the webinar or what the contents are)

Dolphin · Oct 26, 2023

https://twitter.com/user/status/1712194462862934348

https://twitter.com/user/status/1712194465580929429

https://twitter.com/user/status/1712194467812536398

https://twitter.com/user/status/1712194470681124990

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ahimsa · Oct 28, 2023

Posting a link to an earlier thread to add some more info.

As seen in the tweets posted earlier this webinar is sponsored by the New Hampshire chapter of #MEAction.

https://www.s4me.info/threads/usa-news-from-the-bateman-horne-center.24836/page-4#post-496408

Sly Saint · Oct 31, 2023

Long COVID patients aim to educate doctors about their disease

Patients and patient advocates in New Hampshire will bring together experts from around the country at a symposium at Dartmouth in November

CONCORD, N.H. — Frustrated by a lack of progress, long COVID patients in New Hampshire are taking doctor education into their own hands.

Patient advocates have organized a Nov. 6 event at Dartmouth to bring together several long COVID experts from around the country. Medical providers will be able to earn continuing education credit for attending.

Patients hope the event sheds more light on their condition and equips medical providers including nurses, doctors, and physical therapists with some tools to diagnose and treat their conditions.

“It says a lot that we, as patients, are having to organize a medical education event on our own illness,” said Leah Stagnone, a patient advocate who founded a New Hampshire chapter of ME Action, an ME/CFS advocacy organization.

ME/CFS stands for myalgic encephalomyelitis/chronic fatigue syndrome, considered a complex and disabling illness by the Centers for Disease Control and Prevention. Several preliminary studies show that about half of people with long COVID have severe enough symptoms to be diagnosed with ME/CFS.

“Ultimately we are hopeful for a future where our medical institutions and our government are the ones taking responsibility for this so that we don’t have to use our really limited physical capacity to do that,” she said.

Doctors who have specialized in ME/CFS said the medical community should draw from the existing body of knowledge when addressing long COVID. Among them is Dr. Lucinda Bateman, who founded a nonprofit clinic called the Bateman Horne Center in Salt Lake City, Utah, that also focuses on research and doctor education.

Bateman is one of the speakers who will travel to Dartmouth for the November event, called “The Untreated Epidemic: Understanding and Treating Long COVID and ME/CFS.”

“We know a lot about ME/CFS already, so people who are taking care of long COVID don’t need to start from scratch,” she said. There’s information available, for instance, about how the illness presents and how to help patients live with the illness, even in the absence of a cure.

But Bateman said primary care doctors need to be trained to recognize the symptoms, since there are not enough long COVID clinics to meet the need for care. There are about 200 symptoms that a long COVID patient may face.

“It impacts their energy, their cognition, their sleep, their circulation, their immune system, and so you can strategically aim at some of those by prioritizing them,” Bateman said.
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Long COVID patients aim to educate doctors about their disease - The Boston Globe

Dolphin · Jul 2, 2024 at 4:02 PM

Sly Saint said: ↑

Long COVID patients aim to educate doctors about their disease

Patients and patient advocates in New Hampshire will bring together experts from around the country at a symposium at Dartmouth in November

Long COVID patients aim to educate doctors about their disease - The Boston Globe
Click to expand...

From the Massachusetts ME/CFS & FM Association newsletter:
https://massmecfs.org/component/civicrm/?task=civicrm/mailing/view&id=1385&reset=1

Video of Dartmouth Medical Education Event Now Available
In November 2023 #MEAction Northern New England (formerly #MEAction New Hampshire) hosted a medical education event at the Dartmouth Hitchcock Medical Center.

The day-long event featured Lucinda Bateman of the Bateman Horne Center presenting information on diagnosis and clinical care for ME/CFS and Long COVID, Lisa McCorkell of the Patient-Led Research Collaborative on the current state of research for IACCIs, and two panels with clinicians and patients.

The video from this event is now available on YouTube broken into sections for easy viewing:

Opening Remarks with Creighton Ward and Ryan Prior

Post-Viral Syndromes Inform Diagnosis and Care of Long COVID with Dr. Lucinda Bateman

Panel 1: Educating Each Other

The Future of Medicine and Research for Infection-Associated Chronic Conditions with Lisa McCorkell, MPP

Panel 2: Navigating the Systems

Closing Remarks with Giovanni Clarke and Dr. Chris Doyle

https://twitter.com/user/status/1808154297974059058

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