USA: Massachusetts ME/CFS & FM Association news

Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid

https://twitter.com/user/status/1447921040043257856


https://sites.google.com/massmecfs.org/2021annualmeeting

 

https://www.massmecfs.org/news-even...ovid-researchers-at-umass-chan-medical-school

 

Youtube

A Whole-Person Health Approach to ME/CFS: Lessons for Post-COVID Conditions | Full Event

https://www.youtube.com/watch?v=3iekf4XaRo0

 

"Functional medicine is a form of alternative medicine that encompasses a number of unproven and disproven methods and treatments.

...It has been described as pseudoscience,[5] quackery,[6] and at its essence a rebranding of complementary and alternative medicine.[6]

In the United States, functional medicine practices have been ruled ineligible for course credits by the American Academy of Family Physicians because of concerns they may be harmful."

https://en.wikipedia.org/wiki/Functional_medicine

 

https://sciencebasedmedicine.org/fu...ests-in-one-hand-a-huge-invoice-in-the-other/


Functional medicine: Reams of useless tests in one hand, a huge invoice in the other

 

Making a general statement here. There's a big contingent of American woo in advocacy organizations and even some university research departments.

The dissatisfaction with the way the medical establishment 'operated' 20 years ago or so, or the limits of what medicine knows and can do, led to dissatisfaction and search for "better medicine" and this resulted in complementary/alternative and total woo acceptance that has invaded or been tolerated in clinical situations (the customer is always right).

When there is no evidence of efficacy, woo-sham needs to be called out for what is: worthless. But that would offend.

 

Ironically, I keep seeing that the only doctors who even bother to help with Long Covid are functional doctors.

So it may be useless and mostly quackery, but what does it say about medicine that so many people still find it more useful than medicine, because of all the gaslighting and lying?

It's actually hard to be this bad, to be worse than useless. No wonder the alternative medicine industry is that big.

 

Shhh. Don’t tell Tony but the reason that there are emerging parallels is that LC with MECFS symptoms is the same disease as MECFS.

https://twitter.com/user/status/1576936287415816195

 

At this point if you are calling Long Covid "emerging" you just ignored 2 years and 8 months of really vast numbers of disabled people appearing, you can hardly consider yourself any form of expert if you think this is emerging at this point, that horse bolted over 2 years ago. Just as the pandemic is firmly ongoing so is Long Covid. All the research still points to the biggest cohort of Long haulers meeting the Canadian consensus for ME/CFS and many more are likely developing it. You have to have been hiding under a rock never reading any news to not have known about Long Covid for years at this stage and to have ignored all the early research from 2020 that showed the same known biomarkers.

 

@BrightCandle

Which biomarkers are you referring to?

 

This framing of a "parallel pandemic" has been growing a bit lately and it's so damn weird. Like labeling the flooding after a storm as a separate event from the storm itself. This only serves to create a false separation between the consequences of maximizing the spread of COVID.

 

It's so depressing because they have been thinking about LC and disability so little that they need a whole separate concept and talk of a "parallel pandemic" to discuss what has been happening all along and everyone refuses to acknowledge - any outcome other than death or everything being (seemingly) fine.

As long as they get there in the end I'd feel better, but I'm not sure there is a shift in understanding just yet.

 

Hm.

Parallels.

So, is there no possibility of convergence?

 

Maybe in Non-Euclidean medicine?

 

MECFS is diagnosed based on symptoms. If you meet the symptoms criteria (for 6 months), then you have disease. MECFS is agnostic as to the trigger.