Copied post Not specifically about ME Awareness Day but as it was posted today... Anil van der Zee on Twitter "Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days are that exciting, but I often get questions about how I get by. How" "do I eat, clean, go to the toilet, etc. Both from my non-ME friends, people from the patient community and medical professionals. It might give a unique insight into what the disease forces you to do. I've tried not to hold back on any details, including the private ones, and" "show a step-by-step guide through my day. I hope you'll enjoy watching it. There are English & Dutch subtitles included. I advise you to turn them on to understand my English. Groetjes, Anil" And Dave Tuller has posted about Anil's video here, https://virology.ws/2023/05/12/trial-by-error-a-day-in-the-life-of-anil-van-der-zee/
If you want to show the reality of day to day life for someone with very severe ME, Anil van der Zee's film is beautifully done and very moving. Thank you @Grigor and Grigor (your beautiful cat).
