What can a CPET do to diagnose ME, OI, mitochondrial disease, heart conditions, etc.?

Jenny TipsforME said:
Surely it’s just not a viable test for many pwme? Not just thinking of @Dechi style of experience, but people who are already too ill to even choose to risk it.

It’s useful in the occasional research study to evidence the nature of biological abnormalities, but should we be reluctant to accept this test as the gateway to diagnosis or benefits?
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It is appaling and revolting that we have to resort to such treatment to prove disability. The risk of making us more ill is real, and this testing is not realistically available to bedbound patients, who are just as much in need of recognition of their disability, if not more, due to the complexity and increased costs of their care.

What other illness requires you to purposely deteriorate your own health to have money to pay the rent?
 
I was going to attempt the 2-day CPET test in 2013 (prior to finding the ME/CFS specialist in mid 2014 who is now my main doctor) but all of my doctors at that time advised me against it. My HR was still often going into the 160's unprompted at that time and they felt it was unsafe for me. So I have never done CPET (single day or 2-day) but I am very curious what my results might have been.
 
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