Truth is, with NHS England at the helm, not a lot! The odd ICS (like Suffolk (and NE Essex being dragged to agree) identifying ME within their long term 5 year plan 2023 -2028).....????? How many of the new shiny 42 ICS nationwide have done this. Please pray do tell me?
Ever the optimist, I find things to be hopeful for: DecodeME! Results from NIH RECOVER's treatment trials Progress on the long Covid drug pipeline in general (BC-007, CT-38, gaunfacine, etc.) The OMF's treatment trials (presumably preliminary) I'm expecting strong results from Decode. 20k people? We're gonna get some smoking guns.
I don't think we're gonna get results from DecodeME this year — not after recent delays. Paper writing usually takes at least 6 months. Probably spring 2024 IMO.
I'm rather curious on Avindra Nath's study based on the NIH in-house testing of ME-patients, including Brian Vastag. I believe it is to be published soon?
