Where are the invisible? An interactive map of pwME

[Chandelier]

I came across this link and the more I think about it, the more I like it.

#PWME

People with Myalgic Encephalomyelitis not CFS, IOM/SEID, ME/CFS

www.zeemaps.com

An interactive map which makes the invisible pwME epidemic visible as an interesting advocacy/art project.

I‘m wondering if this concept could be further extended to be useful for e.g. study recruitment?
Add a questionnaire for the Canadian criteria, maybe funcap for assessing the severity and then let registered scientists automatically contact users within a given region/radius.

 

[SNT Gatchaman]

"People with Myalgic Encephalomyelitis not CFS, IOM/SEID, ME/CFS"

 

[Trish]

I‘m wondering if this concept could be further extended to be useful for e.g. study recruitment?

The sample size is miniscule. Each blob is for a named individual. I think it's just a way of illustrating where a few people responding to some sort of survey or belonging to an organisation live. It is interesting in the sense that it shows their respondents are mostly in Europe and North America, but it is too small a sample, I think, for advocacy.

Also I'm suspicious about the choice to list only people diagnosed with ME, not those diagnosed with ME/CFS or CFS. There are some organisations which insist only the name and definition they favour have 'real ME'.