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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 17 18 19
    Replies:
    360
    Views:
    26,218
    Tom Kindlon
    May 12, 2025 at 12:56 AM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    14,235
    Art Vandelay
    Feb 16, 2024
  3. Andy

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    Andy, Jul 23, 2024 ... 18 19 20
    Replies:
    397
    Views:
    31,030
    bobbler
    May 12, 2025 at 5:20 PM
  4. ahimsa

    "And Still It Remains: A Long COVID Exhibition" - Artworks Center for Contemporary Art (Loveland, Colorado, USA)

    ahimsa, Apr 26, 2025
    Replies:
    6
    Views:
    403
    Dakota15
    May 10, 2025 at 9:56 PM
  5. Dolphin

    2024: USA NIH NINDS ME/CFS Research Roadmap - now published

    Dolphin, Feb 1, 2024 ... 2 3 4
    Replies:
    62
    Views:
    9,250
    Yann04
    May 6, 2025
  6. ahimsa

    #MEAction Millions Missing 2025, USA campaign - SOS (Save our Support Systems, Save our Science, Save Our Society)

    ahimsa, Apr 10, 2025
    Replies:
    12
    Views:
    867
    ahimsa
    May 3, 2025
  7. Yann04

    A Quiet Storm. Online Art Exhibition on Severe ME

    Yann04, Apr 26, 2025
    Replies:
    2
    Views:
    318
    Utsikt
    Apr 27, 2025
  8. InitialConditions

    [UK, Organise Network] Open letter: A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform

    InitialConditions, Apr 22, 2025
    Replies:
    1
    Views:
    314
    BrightCandle
    Apr 22, 2025
  9. Adam pwme

    New Video ME/CFS Scandal Explainer

    Adam pwme, Nov 21, 2024 ... 2 3
    Replies:
    49
    Views:
    3,907
    Adam pwme
    Mar 16, 2025
  10. rvallee

    Crowdfunded awareness campaigns including billboards

    rvallee, Oct 19, 2023 ... 2 3 4
    Replies:
    67
    Views:
    8,370
    Aaron
    Mar 11, 2025
  11. rvallee

    The Unraveling: A Long Covid documentary

    rvallee, Mar 1, 2025
    Replies:
    2
    Views:
    518
    ahimsa
    Mar 8, 2025
  12. Creek

    Preserving Access to Disappearing Information and Research

    Creek, Feb 16, 2025
    Replies:
    6
    Views:
    625
    Creek
    Mar 4, 2025
  13. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, 2022. New survey ends 30/8/24

    Andy, Mar 8, 2022
    Replies:
    5
    Views:
    1,973
    rvallee
    Feb 28, 2025
  14. Sly Saint

    Psychology wiki

    Sly Saint, Jan 29, 2018
    Replies:
    7
    Views:
    3,042
    Yann04
    Jan 13, 2025
  15. Yann04

    2024: Call for a Research Case Definition Consensus Statement for ME/CFS

    Yann04, Dec 3, 2024 ... 2
    Replies:
    34
    Views:
    2,242
    Yann04
    Dec 14, 2024
  16. rvallee

    Requests for information/papers/sources/documentation

    rvallee, Jun 10, 2021 ... 2
    Replies:
    25
    Views:
    5,097
    rvallee
    Oct 28, 2024
  17. Andy

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Andy, Oct 15, 2018 ... 11 12 13
    Replies:
    245
    Views:
    48,769
    Dolphin
    Oct 18, 2024
  18. Jonathan Edwards

    What do people want me to ask Sonya Chowdhury on Friday

    Jonathan Edwards, Oct 8, 2024 ... 5 6 7
    Replies:
    133
    Views:
    9,094
    hotblack
    Oct 15, 2024
  19. forestglip

    2024: Twitter campaign aimed at John Oliver and Jon Stewart

    forestglip, May 30, 2024 ... 2 3
    Replies:
    52
    Views:
    5,853
    NelliePledge
    Sep 25, 2024
  20. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    Wyva, May 11, 2021 ... 2 3
    Replies:
    59
    Views:
    8,629
    mango
    Sep 6, 2024
  21. Hutan

    UK: Question about the MRC Board members in the 1990s and the redacted "ME file"

    Hutan, Jul 15, 2024
    Replies:
    7
    Views:
    1,482
    Arvo
    Jul 16, 2024
  22. Yann04

    GPT for ME/CFS Questions

    Yann04, Jun 1, 2024 ... 2 3
    Replies:
    40
    Views:
    4,105
    MSEsperanza
    Jul 15, 2024
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