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Advocacy Projects and Campaigns

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  1. Andy

    International: Science for ME social media posts

    Andy, May 1, 2022
    Replies:
    14
    Views:
    677
    Andy
    Jul 4, 2022 at 9:03 AM
  2. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022 at 11:08 AM
    Replies:
    0
    Views:
    127
    Sly Saint
    Jul 2, 2022 at 11:08 AM
  3. Robert 1973

    United Kingdom: Independent SAGE

    Robert 1973, Jan 18, 2022 ... 2 3 4
    Replies:
    64
    Views:
    2,693
    Andy
    Jun 17, 2022
  4. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    608
    MSEsperanza
    Jun 7, 2022
  5. Tara Green

    Help with Advocating

    Tara Green, May 25, 2022
    Replies:
    16
    Views:
    505
    Tara Green
    May 31, 2022
  6. Cheshire

    Improving images used to depict ME/CFS

    Cheshire, Nov 6, 2017 ... 2 3
    Replies:
    59
    Views:
    4,551
    Amw66
    May 30, 2022
  7. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    194
    Sly Saint
    May 28, 2022
  8. Hutan

    New Zealand: HealthInfo ME/CFS pages - feedback please before 25 May 2022

    Hutan, May 19, 2022
    Replies:
    11
    Views:
    358
    Sarah
    May 27, 2022
  9. Kalliope

    Instagram profile: Illustrating M.E.

    Kalliope, Apr 29, 2022
    Replies:
    4
    Views:
    265
    Kalliope
    May 23, 2022
  10. Andy

    ME Awareness Day / Week / Month, May 2022

    Andy, Feb 28, 2022 ... 2 3
    Replies:
    40
    Views:
    2,812
    Andy
    May 22, 2022
  11. Andy

    UK: Priority Setting Partnership for ME/CFS

    Andy, Mar 10, 2020 ... 10 11 12
    Replies:
    232
    Views:
    18,243
    bobbler
    May 21, 2022
  12. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    328
    Phoebe
    May 20, 2022
  13. Sly Saint

    Funding of ME/CFS research in the UK

    Sly Saint, Feb 21, 2018 ... 2 3 4
    Replies:
    72
    Views:
    3,337
    Andy
    May 15, 2022
  14. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    341
    Arnie Pye
    May 10, 2022
  15. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Wyva, Apr 27, 2022 ... 2
    Replies:
    23
    Views:
    647
    Sarah
    May 8, 2022
  16. Andy

    MEAction/Patient-Led Research Collaborative: Call-To-Action For California: Centers Of Excellence in Long COVID along with ME/CFS, May 2022

    Andy, May 3, 2022
    Replies:
    0
    Views:
    185
    Andy
    May 3, 2022
  17. Dr Carrot

    Improving Wikipedia's references to ME/CFS

    Dr Carrot, Jan 30, 2018 ... 7 8 9
    Replies:
    168
    Views:
    19,312
    Hutan
    May 2, 2022
  18. Andy

    [National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS

    Andy, Apr 15, 2022
    Replies:
    3
    Views:
    524
    Samuel
    Apr 20, 2022
  19. rvallee

    Requests for information/papers/sources/documentation

    rvallee, Jun 10, 2021
    Replies:
    15
    Views:
    1,055
    rvallee
    Apr 16, 2022
  20. Yvonne

    End Malnutrition in ME

    Yvonne, Mar 30, 2022
    Replies:
    2
    Views:
    367
    Yvonne
    Mar 30, 2022
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