Advocacy Projects and Campaigns

Andy
  • Sticky
International: Science for ME social media posts
17 18 19
Replies
373
Views
30K
Tom Kindlon
T
Hutan
  • Sticky
Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023
2 3 4
Replies
73
Views
15K
Art Vandelay
Art Vandelay
Andy
#ThereForME campaign / Building an NHS that’s there for Long Covid and ME
19 20 21
Replies
400
Views
35K
MrMagoo
MrMagoo
E
Chronically Ignored - Investigative Documentary
Replies
3
Views
1K
forestglip
forestglip
Dolphin
2024: USA NIH NINDS ME/CFS Research Roadmap - now published
2 3 4
Replies
63
Views
11K
Cinders66
C
ahimsa
"And Still It Remains: A Long COVID Exhibition" - Artworks Center for Contemporary Art (Loveland, Colorado, USA)
Replies
8
Views
734
ahimsa
ahimsa
ahimsa
#MEAction Millions Missing 2025, USA campaign - SOS (Save our Support Systems, Save our Science, Save Our Society)
Replies
12
Views
1K
ahimsa
ahimsa
Yann04
A Quiet Storm. Online Art Exhibition on Severe ME
Replies
2
Views
512
Utsikt
Utsikt
InitialConditions
[UK, Organise Network] Open letter: A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
Replies
1
Views
490
BrightCandle
B
Adam pwme
New Video ME/CFS Scandal Explainer
2 3
Replies
49
Views
5K
Adam pwme
Adam pwme
rvallee
Crowdfunded awareness campaigns including billboards
2 3 4
Replies
67
Views
9K
Aaron
A
rvallee
The Unraveling: A Long Covid documentary
Replies
2
Views
676
ahimsa
ahimsa
Creek
Preserving Access to Disappearing Information and Research
Replies
6
Views
829
Creek
Creek
Andy
Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, 2022. New survey ends 30/8/24
Replies
5
Views
2K
rvallee
rvallee
Sly Saint
Psychology wiki
Replies
7
Views
3K
Yann04
Yann04
Yann04
2024: Call for a Research Case Definition Consensus Statement for ME/CFS
2
Replies
34
Views
3K
Yann04
Yann04
rvallee
Requests for information/papers/sources/documentation
2
Replies
25
Views
6K
rvallee
rvallee
Andy
Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)
11 12 13
Replies
245
Views
51K
Dolphin
Dolphin
Jonathan Edwards
What do people want me to ask Sonya Chowdhury on Friday
5 6 7
Replies
133
Views
11K
hotblack
hotblack
forestglip
2024: Twitter campaign aimed at John Oliver and Jon Stewart
2 3
Replies
52
Views
7K
NelliePledge
NelliePledge
Wyva
2021 Pan-Europe ME Patient Survey (EMEA)
2 3
Replies
59
Views
9K
mango
mango
Hutan
UK: Question about the MRC Board members in the 1990s and the redacted "ME file"
Replies
7
Views
2K
Arvo
Arvo
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