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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 2 3 4
    Replies:
    73
    Views:
    3,835
    Andy
    Apr 1, 2023 at 9:18 AM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - submission deadline 18 Nov 2022

    Hutan, Sep 30, 2022 ... 2 3
    Replies:
    58
    Views:
    3,738
    SNT Gatchaman
    Mar 2, 2023
  3. Robert 1973

    United Kingdom: Independent SAGE

    Robert 1973, Jan 18, 2022 ... 2 3 4
    Replies:
    78
    Views:
    5,170
    rvallee
    Mar 26, 2023 at 4:31 PM
  4. ahimsa

    UK: Campaign called #MPDoYourJobForME

    ahimsa, Mar 22, 2023
    Replies:
    0
    Views:
    114
    ahimsa
    Mar 22, 2023
  5. TiredSam

    EU protests: request for pictures

    TiredSam, Feb 28, 2023
    Replies:
    2
    Views:
    705
    Dolphin
    Mar 5, 2023
  6. Andy

    ME Awareness Day / Week / Month, May 2023

    Andy, Feb 5, 2023
    Replies:
    1
    Views:
    698
    Shadrach Loom
    Feb 5, 2023
  7. Andy

    ME Awareness Day / Week / Month, May 2022

    Andy, Feb 28, 2022 ... 2 3
    Replies:
    41
    Views:
    4,098
    Andy
    Feb 5, 2023
  8. wabi-sabi

    2023 Washington Post article: 'For Long Covid fatigue, a strategy called 'pacing' helps, but at a cost

    wabi-sabi, Jan 18, 2023
    Replies:
    2
    Views:
    828
    ahimsa
    Jan 19, 2023
  9. Andy

    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Andy, Aug 18, 2022 ... 2
    Replies:
    25
    Views:
    1,954
    Fainbrog
    Dec 29, 2022
  10. rvallee

    Requests for information/papers/sources/documentation

    rvallee, Jun 10, 2021 ... 2
    Replies:
    22
    Views:
    2,000
    RedFox
    Dec 19, 2022
  11. Cheshire

    Improving images used to depict ME/CFS

    Cheshire, Nov 6, 2017 ... 2 3 4
    Replies:
    60
    Views:
    6,023
    Joh
    Dec 17, 2022
  12. Adam pwme

    Updated - The PACE trial: Harm Video

    Adam pwme, Apr 22, 2020
    Replies:
    17
    Views:
    2,002
    Sly Saint
    Dec 9, 2022
  13. Dr Carrot

    Improving Wikipedia's references to ME/CFS

    Dr Carrot, Jan 30, 2018 ... 8 9 10
    Replies:
    192
    Views:
    22,764
    CRG
    Dec 7, 2022
  14. Andy

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Andy, Oct 5, 2019 ... 2 3
    Replies:
    59
    Views:
    6,446
    Trish
    Dec 3, 2022
  15. Sly Saint

    Funding of ME/CFS research in the UK

    Sly Saint, Feb 21, 2018 ... 2 3 4
    Replies:
    73
    Views:
    5,096
    Andy
    Oct 21, 2022
  16. Sly Saint

    Bing ME/CFS information

    Sly Saint, Oct 18, 2022
    Replies:
    0
    Views:
    273
    Sly Saint
    Oct 18, 2022
  17. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes 19th April 2022

    Andy, Mar 8, 2022
    Replies:
    2
    Views:
    452
    Dolphin
    Oct 5, 2022
  18. Hutan

    New Zealand: HealthInfo ME/CFS pages - feedback please before 25 May 2022

    Hutan, May 19, 2022
    Replies:
    12
    Views:
    819
    Hutan
    Sep 27, 2022
  19. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    Wyva, May 11, 2021 ... 2 3
    Replies:
    44
    Views:
    2,132
    Trish
    Sep 25, 2022
  20. RoseE

    M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel

    RoseE, Aug 18, 2022
    Replies:
    3
    Views:
    572
    Sly Saint
    Aug 19, 2022
  21. Andy

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Andy, Oct 15, 2018 ... 11 12 13
    Replies:
    241
    Views:
    34,207
    It's M.E. Linda
    Aug 13, 2022
  22. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    486
    bobbler
    Aug 4, 2022
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