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Advocacy Projects and Campaigns

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  1. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - submission deadline 18 Nov 2022

    Hutan, Sep 30, 2022
    Replies:
    11
    Views:
    460
    Sean
    Nov 18, 2022
  2. Andy

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 2
    Replies:
    37
    Views:
    1,874
    Andy
    Nov 21, 2022 at 10:08 AM
  3. rvallee

    Requests for information/papers/sources/documentation

    rvallee, Jun 10, 2021
    Replies:
    19
    Views:
    1,378
    cassava7
    Oct 28, 2022
  4. Sly Saint

    Funding of ME/CFS research in the UK

    Sly Saint, Feb 21, 2018 ... 2 3 4
    Replies:
    73
    Views:
    4,064
    Andy
    Oct 21, 2022
  5. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes 19th April 2022

    Andy, Mar 8, 2022
    Replies:
    2
    Views:
    222
    Dolphin
    Oct 5, 2022
  6. Dr Carrot

    Improving Wikipedia's references to ME/CFS

    Dr Carrot, Jan 30, 2018 ... 7 8 9
    Replies:
    174
    Views:
    20,805
    SNT Gatchaman
    Oct 4, 2022
  7. Hutan

    New Zealand: HealthInfo ME/CFS pages - feedback please before 25 May 2022

    Hutan, May 19, 2022
    Replies:
    12
    Views:
    550
    Hutan
    Sep 27, 2022
  8. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    Wyva, May 11, 2021 ... 2 3
    Replies:
    44
    Views:
    1,316
    Trish
    Sep 25, 2022
  9. Andy

    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Andy, Aug 18, 2022 ... 2
    Replies:
    23
    Views:
    1,259
    Trish
    Sep 6, 2022
  10. RoseE

    M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel

    RoseE, Aug 18, 2022
    Replies:
    3
    Views:
    335
    Sly Saint
    Aug 19, 2022
  11. Andy

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Andy, Oct 15, 2018 ... 11 12 13
    Replies:
    241
    Views:
    32,228
    It's M.E. Linda
    Aug 13, 2022
  12. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    248
    bobbler
    Aug 4, 2022
  13. Sly Saint

    Problematic training courses - please add

    Sly Saint, Jan 5, 2018 ... 2 3
    Replies:
    52
    Views:
    6,025
    Sly Saint
    Jul 7, 2022
  14. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022
    Replies:
    0
    Views:
    293
    Sly Saint
    Jul 2, 2022
  15. Robert 1973

    United Kingdom: Independent SAGE

    Robert 1973, Jan 18, 2022 ... 2 3 4
    Replies:
    64
    Views:
    3,289
    Andy
    Jun 17, 2022
  16. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    875
    MSEsperanza
    Jun 7, 2022
  17. Tara Green

    Help with Advocating

    Tara Green, May 25, 2022
    Replies:
    16
    Views:
    787
    Tara Green
    May 31, 2022
  18. Cheshire

    Improving images used to depict ME/CFS

    Cheshire, Nov 6, 2017 ... 2 3
    Replies:
    59
    Views:
    4,944
    Amw66
    May 30, 2022
  19. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    307
    Sly Saint
    May 28, 2022
  20. Kalliope

    Instagram profile: Illustrating M.E.

    Kalliope, Apr 29, 2022
    Replies:
    4
    Views:
    446
    Kalliope
    May 23, 2022
  21. Andy

    ME Awareness Day / Week / Month, May 2022

    Andy, Feb 28, 2022 ... 2 3
    Replies:
    40
    Views:
    3,537
    Andy
    May 22, 2022
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