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General Advocacy Discussions

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  1. JohnTheJack
    Sticky

    What research do you want to see? (study ideas)

    JohnTheJack, Jul 7, 2018 ... 6 7 8
    Replies:
    157
    Views:
    18,742
    Jaybee00
    May 8, 2025 at 12:07 PM
  2. forestglip

    Attention grabbing media for spreading ME/CFS awareness

    forestglip, May 1, 2025
    Replies:
    14
    Views:
    584
    RainbowCloud
    May 7, 2025 at 4:55 AM
  3. Hutan

    UK Action for ME - policies, actions and publications - discussion thread

    Hutan, Jul 26, 2021 ... 3 4 5
    Replies:
    82
    Views:
    6,040
    Sparkly Unicorn
    Mar 31, 2025
  4. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Sly Saint, Jan 10, 2022
    Replies:
    10
    Views:
    2,356
    forestglip
    Mar 18, 2025
  5. Amw66

    Video query- Help appreciated

    Amw66, Feb 4, 2025
    Replies:
    7
    Views:
    386
    Amw66
    Feb 4, 2025
  6. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    54
    Views:
    12,110
    Sly Saint
    Jan 27, 2025
  7. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3 4
    Replies:
    63
    Views:
    9,419
    Dolphin
    Dec 19, 2024
  8. MSEsperanza

    Finding (patient) advocates and (civil) scientists on social media

    MSEsperanza, Nov 17, 2024
    Replies:
    10
    Views:
    870
    ME/CFS Skeptic
    Nov 24, 2024
  9. Hutan

    Using LinkedIn for advocacy campaigns

    Hutan, Nov 9, 2024
    Replies:
    5
    Views:
    644
    RainbowCloud
    Nov 10, 2024
  10. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 3 4 5
    Replies:
    81
    Views:
    11,105
    Dolphin
    Oct 25, 2024
  11. mango

    A pilot self-advocacy program by Awareness for POTSies

    mango, Oct 11, 2024
    Replies:
    18
    Views:
    870
    Trish
    Oct 17, 2024
  12. Haveyoutriedyoga

    NHS England: Primary care patient safety strategy: Jess's Law 3 strikes and we rethink’.

    Haveyoutriedyoga, Oct 3, 2024
    Replies:
    4
    Views:
    932
    rvallee
    Oct 4, 2024
  13. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2 3
    Replies:
    48
    Views:
    10,923
    Trish
    Oct 2, 2024
  14. Cybergreen91

    2024: Looking for scientific minds for live Twitter Space discussion

    Cybergreen91, Aug 31, 2024
    Replies:
    1
    Views:
    690
    Jonathan Edwards
    Aug 31, 2024
  15. Jaybee00

    Writers needed to debunk pseudoscience—paid

    Jaybee00, Aug 11, 2024
    Replies:
    4
    Views:
    898
    Ash
    Aug 11, 2024
  16. Jaybee00

    Melinda Gates resigns from Gates Foundation

    Jaybee00, May 13, 2024 ... 2
    Replies:
    22
    Views:
    2,790
    Jaybee00
    Jul 28, 2024
  17. bobbler

    Deadline midnight tonight: Review into "Duty of Candour" on gov.uk

    bobbler, May 29, 2024
    Replies:
    2
    Views:
    953
    rvallee
    May 29, 2024
  18. Haveyoutriedyoga

    Communicating the inquiry and new training

    Haveyoutriedyoga, May 22, 2024
    Replies:
    0
    Views:
    875
    Haveyoutriedyoga
    May 22, 2024
  19. JellyBabyKid

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    JellyBabyKid, Apr 20, 2024 ... 2
    Replies:
    30
    Views:
    2,581
    Sean
    May 20, 2024
  20. Jaybee00

    New MECFS rap song by artist Ren!

    Jaybee00, May 10, 2024
    Replies:
    15
    Views:
    2,114
    Aaron
    May 17, 2024
  21. EndME

    Project ideas for DecodeME data

    EndME, May 17, 2024
    Replies:
    4
    Views:
    1,038
    EndME
    May 17, 2024
Showing threads 1 to 20 of 214

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