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Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
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General Advocacy Discussions
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Sticky
What research do you want to see? (study ideas)
JohnTheJack
,
Jul 7, 2018
...
6
7
8
Replies:
153
Views:
16,841
Mij
Nov 24, 2024
Video query- Help appreciated
Amw66
,
Feb 4, 2025
Replies:
7
Views:
263
Amw66
Feb 4, 2025
Why are the majority of pwME rarely mentioned?
Sly Saint
,
Jan 18, 2019
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2
3
Replies:
54
Views:
11,572
Sly Saint
Jan 27, 2025
What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?
Dolphin
,
Apr 8, 2022
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2
3
4
Replies:
63
Views:
8,937
Dolphin
Dec 19, 2024
Finding (patient) advocates and (civil) scientists on social media
MSEsperanza
,
Nov 17, 2024
Replies:
10
Views:
750
ME/CFS Skeptic
Nov 24, 2024
Using LinkedIn for advocacy campaigns
Hutan
,
Nov 9, 2024
Replies:
5
Views:
492
RainbowCloud
Nov 10, 2024
Encyclopedia Britannica website: entry on CFS
Sly Saint
,
Jan 10, 2022
Replies:
8
Views:
2,146
wigglethemouse
Oct 27, 2024
Fundraising for ME/CFS research - opportunities, problems
Dolphin
,
Aug 14, 2019
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3
4
5
Replies:
81
Views:
10,107
Dolphin
Oct 25, 2024
A pilot self-advocacy program by Awareness for POTSies
mango
,
Oct 11, 2024
Replies:
18
Views:
740
Trish
Oct 17, 2024
NHS England: Primary care patient safety strategy: Jess's Law 3 strikes and we rethink’.
Haveyoutriedyoga
,
Oct 3, 2024
Replies:
4
Views:
752
rvallee
Oct 4, 2024
Published poems by Veronica Ashenhurst, who has Severe ME
Simon M
,
Oct 4, 2021
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2
3
Replies:
48
Views:
10,248
Trish
Oct 2, 2024
2024: Looking for scientific minds for live Twitter Space discussion
Cybergreen91
,
Aug 31, 2024
Replies:
1
Views:
590
Jonathan Edwards
Aug 31, 2024
Writers needed to debunk pseudoscience—paid
Jaybee00
,
Aug 11, 2024
Replies:
4
Views:
752
Ash
Aug 11, 2024
Melinda Gates resigns from Gates Foundation
Jaybee00
,
May 13, 2024
...
2
Replies:
22
Views:
2,524
Jaybee00
Jul 28, 2024
Deadline midnight tonight: Review into "Duty of Candour" on gov.uk
bobbler
,
May 29, 2024
Replies:
2
Views:
840
rvallee
May 29, 2024
Communicating the inquiry and new training
Haveyoutriedyoga
,
May 22, 2024
Replies:
0
Views:
802
Haveyoutriedyoga
May 22, 2024
What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?
JellyBabyKid
,
Apr 20, 2024
...
2
Replies:
30
Views:
2,253
Sean
May 20, 2024
New MECFS rap song by artist Ren!
Jaybee00
,
May 10, 2024
Replies:
15
Views:
1,787
Aaron
May 17, 2024
Project ideas for DecodeME data
EndME
,
May 17, 2024
Replies:
4
Views:
907
EndME
May 17, 2024
cognitive dissonance - radio 4 program
FMMM1
,
Mar 20, 2024
Replies:
0
Views:
925
FMMM1
Mar 20, 2024
FOIA denied CFSAC dissolution 2018/56 responsive records
adrienne
,
Jan 5, 2024
Replies:
6
Views:
1,323
adrienne
Jan 7, 2024
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