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General Advocacy Discussions

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  1. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    449
    Sean
    Sep 18, 2023
  2. Sly Saint

    The Brain Charity - website content on ME/CFS

    Sly Saint, Jun 17, 2019
    Replies:
    4
    Views:
    1,076
    Ash
    Sep 11, 2023
  3. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 2 3 4
    Replies:
    75
    Views:
    4,215
    Dolphin
    Sep 6, 2023
  4. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2
    Replies:
    35
    Views:
    5,188
    Simon M
    Sep 6, 2023
  5. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    55
    Views:
    4,556
    Wits_End
    Aug 17, 2023
  6. Phoebe

    My Two Blogs; Puffins and Penguins & Puffs and Pens.

    Phoebe, Aug 11, 2023
    Replies:
    0
    Views:
    316
    Phoebe
    Aug 11, 2023
  7. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    8,726
    Sly Saint
    Aug 3, 2023
  8. Robert 1973

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    Robert 1973, Jul 17, 2023
    Replies:
    3
    Views:
    347
    adambeyoncelowe
    Jul 21, 2023
  9. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    3,643
    AknaMontes
    Jul 11, 2023
  10. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    813
    livinglighter
    Jul 7, 2023
  11. V.R.T.

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    V.R.T., May 26, 2023
    Replies:
    12
    Views:
    695
    Midnattsol
    May 30, 2023
  12. Adam pwme

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Adam pwme, Sep 11, 2022 ... 2
    Replies:
    25
    Views:
    2,795
    Adam pwme
    May 25, 2023
  13. ME/CFS Skeptic

    ME/CFS advocacy successes in Germany

    ME/CFS Skeptic, May 20, 2023
    Replies:
    9
    Views:
    697
    tmrw
    May 22, 2023
  14. Adam pwme

    New video: PEM (2 mins)

    Adam pwme, May 1, 2023
    Replies:
    10
    Views:
    927
    Adam pwme
    May 2, 2023
  15. CRG

    Do androids dream of judicial review? Challenges to automated decision-making processes in the public sector

    CRG, Apr 26, 2023
    Replies:
    0
    Views:
    448
    CRG
    Apr 26, 2023
  16. Richard Smallfield

    Research funding: Examples needed of ME research projects failing due to not getting funding

    Richard Smallfield, Apr 13, 2023 ... 2
    Replies:
    31
    Views:
    1,877
    CRG
    Apr 19, 2023
  17. bobbler

    Scope Campaign: Disability Perception Gap

    bobbler, Mar 18, 2023
    Replies:
    1
    Views:
    546
    Sean
    Mar 19, 2023
  18. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    MSEsperanza, Aug 18, 2021 ... 2 3
    Replies:
    42
    Views:
    4,571
    Adam pwme
    Mar 14, 2023
  19. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    2
    Views:
    664
    bobbler
    Mar 12, 2023
  20. Shadrach Loom

    Renaming the disease: who calls the shots?

    Shadrach Loom, Mar 7, 2023 ... 2 3
    Replies:
    40
    Views:
    2,709
    alex3619
    Mar 10, 2023
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