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General Advocacy Discussions

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  1. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    11
    Views:
    2,200
    bobbler
    Nov 20, 2023
  2. bobbler

    Influence and Participation toolkit?

    bobbler, Nov 17, 2023
    Replies:
    4
    Views:
    1,309
    Hutan
    Nov 18, 2023
  3. Hutan

    Responsible ME/CFS journalism - how to report on treatments?

    Hutan, Oct 21, 2023 ... 2
    Replies:
    20
    Views:
    3,110
    Sean
    Oct 30, 2023
  4. Tom Kindlon

    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Tom Kindlon, Oct 28, 2023
    Replies:
    4
    Views:
    1,274
    Tom Kindlon
    Oct 28, 2023
  5. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    1,693
    Sean
    Sep 18, 2023
  6. Sly Saint

    The Brain Charity - website content on ME/CFS

    Sly Saint, Jun 17, 2019
    Replies:
    4
    Views:
    2,075
    Ash
    Sep 11, 2023
  7. Phoebe

    My Two Blogs; Puffins and Penguins & Puffs and Pens.

    Phoebe, Aug 11, 2023
    Replies:
    0
    Views:
    1,202
    Phoebe
    Aug 11, 2023
  8. Robert 1973

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    Robert 1973, Jul 17, 2023
    Replies:
    3
    Views:
    1,097
    adambeyoncelowe
    Jul 21, 2023
  9. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    7,969
    AknaMontes
    Jul 11, 2023
  10. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    1,852
    livinglighter
    Jul 7, 2023
  11. V.R.T.

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    V.R.T., May 26, 2023
    Replies:
    12
    Views:
    1,631
    Midnattsol
    May 30, 2023
  12. Adam pwme

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Adam pwme, Sep 11, 2022 ... 2
    Replies:
    25
    Views:
    4,585
    Adam pwme
    May 25, 2023
  13. ME/CFS Skeptic

    ME/CFS advocacy successes in Germany

    ME/CFS Skeptic, May 20, 2023
    Replies:
    9
    Views:
    1,550
    tmrw
    May 22, 2023
  14. Adam pwme

    New video: PEM (2 mins)

    Adam pwme, May 1, 2023
    Replies:
    10
    Views:
    1,822
    Adam pwme
    May 2, 2023
  15. CRG

    Do androids dream of judicial review? Challenges to automated decision-making processes in the public sector

    CRG, Apr 26, 2023
    Replies:
    0
    Views:
    997
    CRG
    Apr 26, 2023
  16. Richard Smallfield

    Research funding: Examples needed of ME research projects failing due to not getting funding

    Richard Smallfield, Apr 13, 2023 ... 2
    Replies:
    31
    Views:
    3,619
    CRG
    Apr 19, 2023
  17. bobbler

    Scope Campaign: Disability Perception Gap

    bobbler, Mar 18, 2023
    Replies:
    1
    Views:
    1,103
    Sean
    Mar 19, 2023
  18. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    MSEsperanza, Aug 18, 2021 ... 2 3
    Replies:
    42
    Views:
    6,430
    Adam pwme
    Mar 14, 2023
  19. Shadrach Loom

    Renaming the disease: who calls the shots?

    Shadrach Loom, Mar 7, 2023 ... 2 3
    Replies:
    40
    Views:
    4,534
    alex3619
    Mar 10, 2023
  20. freddyV

    Harassment claims in the media and social media.

    freddyV, Aug 25, 2021 ... 2 3
    Replies:
    53
    Views:
    6,798
    Lou B Lou
    Feb 26, 2023
Showing threads 21 to 40 of 213

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