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General Advocacy Discussions

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  1. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    10,406
    Sly Saint
    Aug 3, 2023
  2. Robert 1973

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    Robert 1973, Jul 17, 2023
    Replies:
    3
    Views:
    810
    adambeyoncelowe
    Jul 21, 2023
  3. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    6,054
    AknaMontes
    Jul 11, 2023
  4. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    1,474
    livinglighter
    Jul 7, 2023
  5. V.R.T.

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    V.R.T., May 26, 2023
    Replies:
    12
    Views:
    1,309
    Midnattsol
    May 30, 2023
  6. Adam pwme

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Adam pwme, Sep 11, 2022 ... 2
    Replies:
    25
    Views:
    3,834
    Adam pwme
    May 25, 2023
  7. ME/CFS Skeptic

    ME/CFS advocacy successes in Germany

    ME/CFS Skeptic, May 20, 2023
    Replies:
    9
    Views:
    1,201
    tmrw
    May 22, 2023
  8. Adam pwme

    New video: PEM (2 mins)

    Adam pwme, May 1, 2023
    Replies:
    10
    Views:
    1,449
    Adam pwme
    May 2, 2023
  9. CRG

    Do androids dream of judicial review? Challenges to automated decision-making processes in the public sector

    CRG, Apr 26, 2023
    Replies:
    0
    Views:
    802
    CRG
    Apr 26, 2023
  10. Richard Smallfield

    Research funding: Examples needed of ME research projects failing due to not getting funding

    Richard Smallfield, Apr 13, 2023 ... 2
    Replies:
    31
    Views:
    2,693
    CRG
    Apr 19, 2023
  11. bobbler

    Scope Campaign: Disability Perception Gap

    bobbler, Mar 18, 2023
    Replies:
    1
    Views:
    831
    Sean
    Mar 19, 2023
  12. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    MSEsperanza, Aug 18, 2021 ... 2 3
    Replies:
    42
    Views:
    5,470
    Adam pwme
    Mar 14, 2023
  13. Shadrach Loom

    Renaming the disease: who calls the shots?

    Shadrach Loom, Mar 7, 2023 ... 2 3
    Replies:
    40
    Views:
    3,572
    alex3619
    Mar 10, 2023
  14. freddyV

    Harassment claims in the media and social media.

    freddyV, Aug 25, 2021 ... 2 3
    Replies:
    53
    Views:
    5,696
    Lou B Lou
    Feb 26, 2023
  15. Adam pwme

    New Video: Chronic Fatigue Syndrome is a terrible name

    Adam pwme, Jan 11, 2023
    Replies:
    14
    Views:
    1,544
    DokaGirl
    Jan 12, 2023
  16. Simone

    Butterfly symbol for ME/CFS

    Simone, Jan 6, 2023 ... 2
    Replies:
    28
    Views:
    2,943
    Simone
    Jan 8, 2023
  17. CRG

    UK:(England)Department of Health & Social Care, Ministers 12/2022

    CRG, Dec 15, 2022
    Replies:
    1
    Views:
    965
    Shadrach Loom
    Dec 15, 2022
  18. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    InitialConditions, Feb 3, 2022
    Replies:
    4
    Views:
    1,710
    NelliePledge
    Dec 3, 2022
  19. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    JaimeS, Jul 24, 2018 ... 12 13 14
    Replies:
    274
    Views:
    28,438
    Arvo
    Nov 27, 2022
  20. Andy

    Reporting on chronic, and particular energy-limiting, conditions - Ed Yong

    Andy, Sep 29, 2022
    Replies:
    1
    Views:
    1,183
    Sly Saint
    Sep 29, 2022
Showing threads 21 to 40 of 208

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