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General Advocacy Discussions

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  1. Shadrach Loom

    Renaming the disease: who calls the shots?

    Shadrach Loom, Mar 7, 2023 ... 2 3
    Replies:
    40
    Views:
    4,706
    alex3619
    Mar 10, 2023
  2. freddyV

    Harassment claims in the media and social media.

    freddyV, Aug 25, 2021 ... 2 3
    Replies:
    53
    Views:
    6,965
    Lou B Lou
    Feb 26, 2023
  3. Adam pwme

    New Video: Chronic Fatigue Syndrome is a terrible name

    Adam pwme, Jan 11, 2023
    Replies:
    14
    Views:
    2,041
    DokaGirl
    Jan 12, 2023
  4. Simone

    Butterfly symbol for ME/CFS

    Simone, Jan 6, 2023 ... 2
    Replies:
    28
    Views:
    4,858
    Simone
    Jan 8, 2023
  5. CRG

    UK:(England)Department of Health & Social Care, Ministers 12/2022

    CRG, Dec 15, 2022
    Replies:
    1
    Views:
    1,326
    Shadrach Loom
    Dec 15, 2022
  6. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    InitialConditions, Feb 3, 2022
    Replies:
    4
    Views:
    2,153
    NelliePledge
    Dec 3, 2022
  7. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    JaimeS, Jul 24, 2018 ... 12 13 14
    Replies:
    274
    Views:
    34,677
    Arvo
    Nov 27, 2022
  8. Andy

    Reporting on chronic, and particular energy-limiting, conditions - Ed Yong

    Andy, Sep 29, 2022
    Replies:
    1
    Views:
    1,463
    Sly Saint
    Sep 29, 2022
  9. bobbler

    Valerie Eliot Smith blog (6th Sept) - 'stepping back'

    bobbler, Sep 15, 2022
    Replies:
    7
    Views:
    1,867
    DokaGirl
    Sep 15, 2022
  10. Sly Saint

    Provide feedback to Google re NHS ME/CFS info

    Sly Saint, Sep 7, 2021
    Replies:
    5
    Views:
    1,702
    RedFox
    Aug 4, 2022
  11. Trish

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    Trish, Mar 12, 2019 ... 5 6 7
    Replies:
    132
    Views:
    18,441
    Esther12
    Jul 31, 2022
  12. Lidia Thompson

    Request for information regarding comparisons with ME/CFS and Long Covid

    Lidia Thompson, Jan 24, 2022 ... 2
    Replies:
    23
    Views:
    3,308
    Hutan
    Jul 31, 2022
  13. MittEremltage

    Why use Forget Me Not as a symbol for ME?

    MittEremltage, May 12, 2022 ... 2
    Replies:
    24
    Views:
    3,137
    Wonko
    May 14, 2022
  14. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    Samuel, Feb 20, 2022
    Replies:
    8
    Views:
    1,929
    Trish
    Apr 26, 2022
  15. Andy

    WebMD: Even Women Doctors Find Their Symptoms Aren’t Taken Seriously

    Andy, Apr 15, 2022
    Replies:
    4
    Views:
    1,356
    Arnie Pye
    Apr 16, 2022
  16. Hoopoe

    Postexertional Malaise Syndrome?

    Hoopoe, Apr 12, 2022 ... 2
    Replies:
    27
    Views:
    3,248
    JemPD
    Apr 13, 2022
  17. CRG

    Freedom of Information UK

    CRG, Apr 7, 2022
    Replies:
    0
    Views:
    1,045
    CRG
    Apr 7, 2022
  18. Hoopoe

    A practical way to get more high quality research into ME/CFS and specialized care

    Hoopoe, Mar 11, 2022
    Replies:
    1
    Views:
    1,156
    Samuel
    Mar 14, 2022
  19. Florence

    Looking for authoritative explainer of cognitive dysfunction

    Florence, Feb 16, 2022
    Replies:
    5
    Views:
    1,290
    Hutan
    Mar 11, 2022
  20. Arvo

    Coining a term for being limited in your interrelated energy and time.

    Arvo, Feb 11, 2022 ... 2
    Replies:
    23
    Views:
    2,856
    Arvo
    Feb 25, 2022
Showing threads 41 to 60 of 214

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