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General Advocacy Discussions

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  1. bobbler

    Valerie Eliot Smith blog (6th Sept) - 'stepping back'

    bobbler, Sep 15, 2022
    Replies:
    7
    Views:
    1,452
    DokaGirl
    Sep 15, 2022
  2. Sly Saint

    Provide feedback to Google re NHS ME/CFS info

    Sly Saint, Sep 7, 2021
    Replies:
    5
    Views:
    1,440
    RedFox
    Aug 4, 2022
  3. Trish

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    Trish, Mar 12, 2019 ... 5 6 7
    Replies:
    132
    Views:
    15,393
    Esther12
    Jul 31, 2022
  4. Lidia Thompson

    Request for information regarding comparisons with ME/CFS and Long Covid

    Lidia Thompson, Jan 24, 2022 ... 2
    Replies:
    23
    Views:
    2,623
    Hutan
    Jul 31, 2022
  5. MittEremltage

    Why use Forget Me Not as a symbol for ME?

    MittEremltage, May 12, 2022 ... 2
    Replies:
    24
    Views:
    2,349
    Wonko
    May 14, 2022
  6. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    Samuel, Feb 20, 2022
    Replies:
    8
    Views:
    1,559
    Trish
    Apr 26, 2022
  7. Andy

    WebMD: Even Women Doctors Find Their Symptoms Aren’t Taken Seriously

    Andy, Apr 15, 2022
    Replies:
    4
    Views:
    1,065
    Arnie Pye
    Apr 16, 2022
  8. Hoopoe

    Postexertional Malaise Syndrome?

    Hoopoe, Apr 12, 2022 ... 2
    Replies:
    27
    Views:
    2,475
    JemPD
    Apr 13, 2022
  9. CRG

    Freedom of Information UK

    CRG, Apr 7, 2022
    Replies:
    0
    Views:
    830
    CRG
    Apr 7, 2022
  10. Hoopoe

    A practical way to get more high quality research into ME/CFS and specialized care

    Hoopoe, Mar 11, 2022
    Replies:
    1
    Views:
    966
    Samuel
    Mar 14, 2022
  11. Florence

    Looking for authoritative explainer of cognitive dysfunction

    Florence, Feb 16, 2022
    Replies:
    5
    Views:
    1,015
    Hutan
    Mar 11, 2022
  12. Arvo

    Coining a term for being limited in your interrelated energy and time.

    Arvo, Feb 11, 2022 ... 2
    Replies:
    23
    Views:
    2,230
    Arvo
    Feb 25, 2022
  13. Andy

    My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”

    Andy, Feb 23, 2022
    Replies:
    13
    Views:
    1,188
    DigitalDrifter
    Feb 23, 2022
  14. DigitalDrifter

    Help Me Write A Quantum Leap Episode About ME

    DigitalDrifter, Feb 11, 2022
    Replies:
    13
    Views:
    1,289
    DigitalDrifter
    Feb 18, 2022
  15. Wyva

    Contacting researchers

    Wyva, Jan 31, 2022
    Replies:
    6
    Views:
    946
    Wyva
    Feb 7, 2022
  16. leokitten

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    leokitten, Jan 18, 2022
    Replies:
    14
    Views:
    1,689
    Jaybee00
    Feb 7, 2022
  17. Wyva

    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    Wyva, Jan 11, 2022
    Replies:
    3
    Views:
    837
    alktipping
    Jan 12, 2022
  18. InitialConditions

    Harvard Health CFS website content

    InitialConditions, Jul 5, 2020
    Replies:
    17
    Views:
    2,146
    Amw66
    Dec 21, 2021
  19. Sly Saint

    Chronic fatigue tests being sold online

    Sly Saint, May 20, 2019
    Replies:
    16
    Views:
    1,929
    Sly Saint
    Dec 19, 2021
  20. Keela Too

    Why doctors over estimate their skills

    Keela Too, Dec 1, 2021
    Replies:
    6
    Views:
    1,118
    DokaGirl
    Dec 3, 2021
Showing threads 41 to 60 of 208

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