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General Advocacy Discussions

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  1. Andy

    My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”

    Andy, Feb 23, 2022
    Replies:
    13
    Views:
    1,594
    DigitalDrifter
    Feb 23, 2022
  2. DigitalDrifter

    Help Me Write A Quantum Leap Episode About ME

    DigitalDrifter, Feb 11, 2022
    Replies:
    13
    Views:
    1,612
    DigitalDrifter
    Feb 18, 2022
  3. Wyva

    Contacting researchers

    Wyva, Jan 31, 2022
    Replies:
    6
    Views:
    1,288
    Wyva
    Feb 7, 2022
  4. leokitten

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    leokitten, Jan 18, 2022
    Replies:
    14
    Views:
    2,168
    Jaybee00
    Feb 7, 2022
  5. Wyva

    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    Wyva, Jan 11, 2022
    Replies:
    3
    Views:
    1,156
    alktipping
    Jan 12, 2022
  6. InitialConditions

    Harvard Health CFS website content

    InitialConditions, Jul 5, 2020
    Replies:
    17
    Views:
    2,607
    Amw66
    Dec 21, 2021
  7. Sly Saint

    Chronic fatigue tests being sold online

    Sly Saint, May 20, 2019
    Replies:
    16
    Views:
    2,316
    Sly Saint
    Dec 19, 2021
  8. Keela Too

    Why doctors over estimate their skills

    Keela Too, Dec 1, 2021
    Replies:
    6
    Views:
    1,472
    DokaGirl
    Dec 3, 2021
  9. ME/CFS Skeptic

    #MEawarenesshour every wednesday on twitter

    ME/CFS Skeptic, Jan 4, 2020 ... 2
    Replies:
    38
    Views:
    5,747
    Adam pwme
    Nov 3, 2021
  10. Adam pwme

    New Video: NICE pause ME/CFS guideline

    Adam pwme, Oct 18, 2021
    Replies:
    13
    Views:
    2,097
    Adam pwme
    Oct 19, 2021
  11. Sly Saint

    Informed Consent

    Sly Saint, Aug 31, 2021 ... 2
    Replies:
    32
    Views:
    4,136
    Jonathan Edwards
    Oct 18, 2021
  12. Obermann

    BPS proponents don't respond well to criticism

    Obermann, Aug 24, 2021 ... 2
    Replies:
    26
    Views:
    3,582
    MSEsperanza
    Sep 20, 2021
  13. Andy

    UK: National Institute of Health Research: Suggest a research topic

    Andy, Sep 17, 2021
    Replies:
    1
    Views:
    871
    Invisible Woman
    Sep 17, 2021
  14. CRG

    Yet another NHS reform !

    CRG, Jul 14, 2021
    Replies:
    7
    Views:
    1,524
    CRG
    Sep 10, 2021
  15. PeterW

    Communications support: Graphics, writers, websites etc.

    PeterW, Aug 26, 2021
    Replies:
    3
    Views:
    882
    MSEsperanza
    Aug 30, 2021
  16. FMMM1

    Linking up with the Long covid community

    FMMM1, Jul 25, 2021
    Replies:
    10
    Views:
    1,725
    Simbindi
    Aug 20, 2021
  17. dratalanta

    Twitter issues

    dratalanta, Aug 17, 2021
    Replies:
    8
    Views:
    943
    Simbindi
    Aug 18, 2021
  18. InitialConditions

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    InitialConditions, Jul 5, 2021 ... 2 3
    Replies:
    57
    Views:
    6,450
    Amw66
    Aug 15, 2021
  19. FMMM1

    U.K. APPG on coronavirus - a route to lobby for ME/CFS?

    FMMM1, Aug 12, 2021
    Replies:
    3
    Views:
    1,252
    NelliePledge
    Aug 13, 2021
  20. Hoopoe

    Should Science for ME produce its own ME guidelines?

    Hoopoe, Jun 2, 2021
    Replies:
    2
    Views:
    992
    Hoopoe
    Jun 3, 2021
Showing threads 61 to 80 of 214

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Page 4 of 11