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General Advocacy Discussions

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  1. ME/CFS Skeptic

    #MEawarenesshour every wednesday on twitter

    ME/CFS Skeptic, Jan 4, 2020 ... 2
    Replies:
    38
    Views:
    4,938
    Adam pwme
    Nov 3, 2021
  2. Adam pwme

    New Video: NICE pause ME/CFS guideline

    Adam pwme, Oct 18, 2021
    Replies:
    13
    Views:
    1,617
    Adam pwme
    Oct 19, 2021
  3. Sly Saint

    Informed Consent

    Sly Saint, Aug 31, 2021 ... 2
    Replies:
    32
    Views:
    3,147
    Jonathan Edwards
    Oct 18, 2021
  4. Obermann

    BPS proponents don't respond well to criticism

    Obermann, Aug 24, 2021 ... 2
    Replies:
    26
    Views:
    2,771
    MSEsperanza
    Sep 20, 2021
  5. Andy

    UK: National Institute of Health Research: Suggest a research topic

    Andy, Sep 17, 2021
    Replies:
    1
    Views:
    679
    Invisible Woman
    Sep 17, 2021
  6. Hutan

    UK Action for ME - policies, actions and publications - discussion thread

    Hutan, Jul 26, 2021 ... 2 3
    Replies:
    55
    Views:
    3,690
    NelliePledge
    Sep 10, 2021
  7. CRG

    Yet another NHS reform !

    CRG, Jul 14, 2021
    Replies:
    7
    Views:
    1,184
    CRG
    Sep 10, 2021
  8. PeterW

    Communications support: Graphics, writers, websites etc.

    PeterW, Aug 26, 2021
    Replies:
    3
    Views:
    683
    MSEsperanza
    Aug 30, 2021
  9. FMMM1

    Linking up with the Long covid community

    FMMM1, Jul 25, 2021
    Replies:
    10
    Views:
    1,362
    Simbindi
    Aug 20, 2021
  10. dratalanta

    Twitter issues

    dratalanta, Aug 17, 2021
    Replies:
    8
    Views:
    683
    Simbindi
    Aug 18, 2021
  11. InitialConditions

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    InitialConditions, Jul 5, 2021 ... 2 3
    Replies:
    57
    Views:
    5,095
    Amw66
    Aug 15, 2021
  12. FMMM1

    U.K. APPG on coronavirus - a route to lobby for ME/CFS?

    FMMM1, Aug 12, 2021
    Replies:
    3
    Views:
    664
    NelliePledge
    Aug 13, 2021
  13. ME/CFS Skeptic

    Overview of NIH grants for ME/CFS research

    ME/CFS Skeptic, Sep 3, 2020
    Replies:
    13
    Views:
    1,535
    ME/CFS Skeptic
    Jul 27, 2021
  14. Hoopoe

    Should Science for ME produce its own ME guidelines?

    Hoopoe, Jun 2, 2021
    Replies:
    2
    Views:
    802
    Hoopoe
    Jun 3, 2021
  15. Andy

    ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021

    Andy, Apr 22, 2021 ... 2
    Replies:
    26
    Views:
    3,223
    NelliePledge
    May 3, 2021
  16. Simone

    ME/CFS and permanency

    Simone, Mar 4, 2019 ... 2
    Replies:
    28
    Views:
    2,943
    DigitalDrifter
    Apr 19, 2021
  17. Andy

    UK: National Institute for Health Research: Supporting patient and public involvement in research

    Andy, Apr 8, 2021
    Replies:
    0
    Views:
    579
    Andy
    Apr 8, 2021
  18. Robert 1973

    Suggestion for S4ME thread of ME testimonies

    Robert 1973, Jan 23, 2021 ... 2
    Replies:
    23
    Views:
    3,261
    Invisible Woman
    Mar 20, 2021
  19. Amw66

    Engaging with severly affected - surveys etc ( PLP survey coming up)

    Amw66, Mar 1, 2021
    Replies:
    1
    Views:
    908
    Kitty
    Mar 1, 2021
  20. ME/CFS Skeptic

    Can we call ME/CFS a disease?

    ME/CFS Skeptic, May 1, 2019 ... 2
    Replies:
    38
    Views:
    4,147
    arewenearlythereyet
    Feb 25, 2021
Showing threads 61 to 80 of 208

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