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Recent Activity

Activity stream for all registered members at Science for ME.

  1. Dolphin liked Hutan's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.

    I'm noting the different responses from forum members to this questionnaire, which is a PROM, and the MEA-funded work of Sarah Tyson's...

    Jun 15, 2024 at 1:02 AM

  2. Lindberg liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.

    Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...

    Jun 15, 2024 at 1:01 AM

  3. Hutan liked Joan Crawford's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.

    Paper https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)00700-1/fulltext Effectiveness of a symptom-clinic...

    Jun 15, 2024 at 12:59 AM

  4. Hutan liked Joan Crawford's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.

    Merged thread Commentary re newly published? trial on MUS in the Lancet. Silje Endresen Reme...

    Jun 15, 2024 at 12:59 AM

  5. Hutan liked adambeyoncelowe's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.

    I agree. The wording is designed to sound reasonable. It's certainly less offensive than older stuff. In some ways, that's better if it...

    Jun 15, 2024 at 12:54 AM

  6. Wits_End liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Strongly agree. Remember too that Margaret Williams is a pseudonym. So unless it’s supported by reliable primary sources it is an...

    Jun 15, 2024 at 12:53 AM

  7. Wits_End liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    I recommend not saying that. As Prof W disputes it and says he was not involved. yes IIRC it says he was not involved. I'm not saying...

    Jun 15, 2024 at 12:53 AM

  8. LJord liked Turtle's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    I respecfully disagree. Normally I just accept what you post, because of your vast knowledge and experience; now I disagree. I don't...

    Jun 15, 2024 at 12:53 AM

  9. Wits_End liked dave30th's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Who is the journalist? I'm happy to touch base with them as a fellow journalist if I have contact info.

    Jun 15, 2024 at 12:52 AM

  10. Wits_End liked MrMagoo's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    I would firstly reply to the researcher and ask her what is she looking for specifically? As there are several angles -abuse of children...

    Jun 15, 2024 at 12:52 AM
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