Recent Activity
Activity stream for all registered members at Science for ME.
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Snow Leopard liked Yann04's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
On twitter, someone pointed out the Depression and Anxiety questionnaire used would give false positives based on being sick. Quote:...
Jun 14, 2024 at 9:34 PM -
FMMM1 liked Jonathan Edwards's post in the thread Good Days and Bad Days in Cancer Fatigue.
I have never asked in detail but my memory of patients on chemotherapy is that they would say 'I can handle it and I know it's worth it...
Jun 14, 2024 at 9:33 PM -
Peter Trewhitt liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Strongly agree. Remember too that Margaret Williams is a pseudonym. So unless it’s supported by reliable primary sources it is an...
Jun 14, 2024 at 9:33 PM -
FMMM1 liked Turtle's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
Van Campen, Visser (2020) found 90% of ME/CFS patients had hypoperfusion during the tilt table test with doppler, not the healthy...
Jun 14, 2024 at 9:32 PM -
FMMM1 liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
It would. I always get that after getting up from a sofa if I have been sitting upright, but I don't get it getting up from a sofa if I...
Jun 14, 2024 at 9:32 PM -
Peter Trewhitt liked MrMagoo's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
In Ean’s MEpedia page there’s a good, sourced overview of S Wessely. Including M Williams. I agree the researcher doesn’t need to be...
Jun 14, 2024 at 9:32 PM -
Peter Trewhitt liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Sorry Aaron i just not well enough to read/take in all that at the moment so i dont know. But unless it contains actual letters and...
Jun 14, 2024 at 9:32 PM -
Peter Trewhitt liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
https://www.margaretwilliams.me/2005/to-set-the-record-straight-about-ean-proctor-from-isle-of-man.pdf This is pretty damning evidence...
Jun 14, 2024 at 9:31 PM -
FMMM1 liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
The shift in plasma protein level is almost certainly part of a long term mechanism to re-adjust the blood volume needed for perfusion...
Jun 14, 2024 at 9:31 PM -
Peter Trewhitt liked MrMagoo's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
He still lives on the Isle of Man and works in IT, and photography. I don’t recall where I saw this, sorry. He fully recovered and I...
Jun 14, 2024 at 9:31 PM -
Peter Trewhitt liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I recommend not saying that. As Prof W disputes it and says he was not involved. yes IIRC it says he was not involved. I'm not saying...
Jun 14, 2024 at 9:31 PM -
Peter Trewhitt liked dave30th's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Who is the journalist? I'm happy to touch base with them as a fellow journalist if I have contact info.
Jun 14, 2024 at 9:30 PM
