Recent Activity
Activity stream for all registered members at Science for ME.
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Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Seriously, well done and I hope it’s a useful conversation.
Jun 14, 2024 at 9:45 PM -
Lou B Lou liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
:thumbup: I'd be nothing other than polite ;)
Jun 14, 2024 at 9:45 PM -
Lou B Lou liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I hope that it all now disappears re ME. I have offered and the boss (Vinny) has asked Janet to follow up next week.
Jun 14, 2024 at 9:45 PM -
Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
WOW excellent update! Hooray!
Jun 14, 2024 at 9:44 PM -
Lou B Lou liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Ha ha my letter to the boss perhaps did the trick.... Just received this Dear Sir/Madam, We recognise that our initial outreach for...
Jun 14, 2024 at 9:43 PM -
DigitalDrifter liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
https://www.margaretwilliams.me/2005/to-set-the-record-straight-about-ean-proctor-from-isle-of-man.pdf This is pretty damning evidence...
Jun 14, 2024 at 9:43 PM -
Lou B Lou liked NelliePledge's post in the thread : TV casting call for people living with ME/CFS.
Well Netflix have history so I wouldn’t be surprised it it was them
Jun 14, 2024 at 9:43 PM -
Snow Leopard liked Yann04's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
On twitter, someone pointed out the Depression and Anxiety questionnaire used would give false positives based on being sick. Quote:...
Jun 14, 2024 at 9:34 PM -
FMMM1 liked Jonathan Edwards's post in the thread Good Days and Bad Days in Cancer Fatigue.
I have never asked in detail but my memory of patients on chemotherapy is that they would say 'I can handle it and I know it's worth it...
Jun 14, 2024 at 9:33 PM -
Peter Trewhitt liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Strongly agree. Remember too that Margaret Williams is a pseudonym. So unless it’s supported by reliable primary sources it is an...
Jun 14, 2024 at 9:33 PM -
FMMM1 liked Turtle's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
Van Campen, Visser (2020) found 90% of ME/CFS patients had hypoperfusion during the tilt table test with doppler, not the healthy...
Jun 14, 2024 at 9:32 PM -
FMMM1 liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
It would. I always get that after getting up from a sofa if I have been sitting upright, but I don't get it getting up from a sofa if I...
Jun 14, 2024 at 9:32 PM
