Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Trish's post in the thread Open Medicine Foundation (OMF).
@MelbME, are you planning to use any cognitive testing as part of your outcome assessments?
Jun 15, 2024 at 3:56 AM -
Sean liked Trish's post in the thread Open Medicine Foundation (OMF).
I'm liking very much your development of ways to track changes and potential for use as outcome measures. I like the mix of the three...
Jun 15, 2024 at 3:56 AM -
Sean liked csinclair02's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
One has to wonder what it would have been like to be a fly on the wall at NIH. I can't imagine that Nath likes working with Walitt. But...
Jun 15, 2024 at 3:56 AM -
Sean liked bobbler's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
As if drilling people to think they should avoid it and be embarrassed by it actually helps reduce it rather than adding psychological...
Jun 15, 2024 at 3:55 AM -
Sean liked livinglighter's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
It sounds like to me what they are saying is, “Try not to have your seizures in front of people in case you find out they are actually...
Jun 15, 2024 at 3:55 AM -
Sean liked bobbler's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
“Do it on you own time please!” ?
Jun 15, 2024 at 3:55 AM -
Sean replied to the thread : TV casting call for people living with ME/CFS.
Never existed. Was always nothing more than a sop for public relations purposes. Caused some offence?!? Standard non-apology. It is a...
Jun 15, 2024 at 3:54 AM -
Sean liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
:thumbup: I'd be nothing other than polite ;)
Jun 15, 2024 at 3:53 AM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Ok please remember not to threaten their lives, you know how pwME are terrifying and abusive/s
Jun 15, 2024 at 3:53 AM -
Sean liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I hope that it all now disappears re ME. I have offered and the boss (Vinny) has asked Janet to follow up next week.
Jun 15, 2024 at 3:53 AM -
Sean liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Ha ha my letter to the boss perhaps did the trick.... Just received this Dear Sir/Madam, We recognise that our initial outreach for...
Jun 15, 2024 at 3:53 AM -
Sean liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I have forwarded my two polite, informative emails that I sent to producer Janet Chute on Tuesday and Thursday to the Head of Television...
Jun 15, 2024 at 3:53 AM -
Sean liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
BACME have confirmed they are not involved.
Jun 15, 2024 at 3:53 AM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Imagine the intersection of being fatigued by a very visible illness, and being marginalised because you’re black. Studies have shown...
Jun 15, 2024 at 3:52 AM -
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I wonder which channel commissioned this/they’re trying to sell to? BBC already got burned with the ear seeds backlash C4 surely has...
Jun 15, 2024 at 3:52 AM
