Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Andy's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
Tucked away in supplementary materials,...
Jun 15, 2024 at 12:35 AM -
Hutan liked MEMarge's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
So, this PHQ basically asks "Are you bothered?" or rather "Over the last week have you been bothered by x" There are then 3 options:...
Jun 15, 2024 at 12:34 AM -
Deanne NZ liked Binkie4's post in the thread EDS and ME - is there a connection?.
Type 111 EDS, the only one of the 14 types not to have a genetic marker, until now. The paper also addresses the issue of...
Jun 15, 2024 at 12:33 AM -
Hutan liked Sly Saint's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
ah but thats the thing; they don't expect different results, and do everything they can to make it so.
Jun 15, 2024 at 12:32 AM -
Deanne NZ liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Strongly agree. Remember too that Margaret Williams is a pseudonym. So unless it’s supported by reliable primary sources it is an...
Jun 15, 2024 at 12:32 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah Braincheck but any tests that assess executive function or processing speed are fine.
Jun 15, 2024 at 12:31 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes it will be free for others to use once ready for release. We will beta test with patients very soon. Because of it's novelty we are...
Jun 15, 2024 at 12:31 AM -
Deanne NZ liked Kitty's post in the thread Open Medicine Foundation (OMF).
In terms of symptoms, @MelbME, it may be useful to have some reference to time of day. I'm not sure quite what (can't think clearly at...
Jun 15, 2024 at 12:31 AM -
Deanne NZ liked Trish's post in the thread Open Medicine Foundation (OMF).
@MelbME, are you planning to use any cognitive testing as part of your outcome assessments?
Jun 15, 2024 at 12:30 AM -
Deanne NZ liked Trish's post in the thread Open Medicine Foundation (OMF).
I'm liking very much your development of ways to track changes and potential for use as outcome measures. I like the mix of the three...
Jun 15, 2024 at 12:30 AM -
Deanne NZ liked Hutan's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
I'm noting the different responses from forum members to this questionnaire, which is a PROM, and the MEA-funded work of Sarah Tyson's...
Jun 15, 2024 at 12:29 AM -
Deanne NZ liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...
Jun 15, 2024 at 12:28 AM -
Hutan replied to the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
I'm noting the different responses from forum members to this questionnaire, which is a PROM, and the MEA-funded work of Sarah Tyson's...
Jun 15, 2024 at 12:23 AM
