Recent Activity
Activity stream for all registered members at Science for ME.
-
Hutan liked trudeschei's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
We have allready talked to researchers who want to use FUNCAP in upcoming studie, so it will probably tested soon. We have had positive...
Jun 14, 2024 at 11:36 PM -
Hutan liked ME/CFS Skeptic's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Looks very useful to me. The supplementary material includes the full questionnaire. It consists 55 concrete questions about...
Jun 14, 2024 at 11:36 PM
-
Hutan liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Start of merged preprint thread Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) is an acquired disease with significant...
Jun 14, 2024 at 11:35 PM -
Hutan liked trudeschei's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
No, we are not setting a cut-off score for being able to work etc. The questionnaire looks at various domains, and having a low score in...
Jun 14, 2024 at 11:34 PM -
Hutan liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
I have limited context, and I'm also aware of how challenging it can be to create a good questionnaire, however my thought on all of...
Jun 14, 2024 at 11:32 PM -
rvallee replied to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
There is definitely a basis to this. They are not especially accurate, but that much precision isn't really needed, and the problem...
Jun 14, 2024 at 11:31 PM -
Hutan liked Ravn's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
@trudeschei, are you looking at writing up a paper for publication about the process of developing this questionnaire? I think that...
Jun 14, 2024 at 11:30 PM -
rvallee replied to the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
It's a recognition that COVID can cause a huge number of health issues, some of which are syndromes or even single symptoms. Which...
Jun 14, 2024 at 11:29 PM -
Hutan liked Trish's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
There is also the cumulative effect of activities over a day and several days. Perhaps when asking whether you can do an activity you...
Jun 14, 2024 at 11:24 PM
