Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
@Ken Turnbull , I am wondering how reliable this test is as clinical information. Novak seems to have created this category of...
Jun 15, 2024 at 12:10 AM -
Hutan liked Kitty's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Yes, mine was 2.85, which I think is fairly accurate – though it's skewed a bit by a walking impairment that I don't think can be...
Jun 15, 2024 at 12:10 AM -
Hutan liked NelliePledge's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
My score came out as 3.7 lower (ie less severe) end of moderate the areas that are most challenging are activity outside the house and...
Jun 15, 2024 at 12:10 AM -
Peter Trewhitt liked Ken Turnbull's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
I was about to write to some of the researchers and ask them about the different placement of the ultrasound probes when they sent a...
Jun 15, 2024 at 12:10 AM -
Peter Trewhitt liked Ken Turnbull's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
@Hutan , thank you very much for the suggestion. I will give it a try and report back.
Jun 15, 2024 at 12:09 AM -
Peter Trewhitt liked Hutan's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
I don't know the answer to your question, perhaps someone here will tell us. But, failing that, I think you might be surprised at the...
Jun 15, 2024 at 12:09 AM -
Peter Trewhitt liked Ken Turnbull's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
I've been trying to organise this test for my daughter for some time, so we've read as much on it as we can. Gets a bit technical...
Jun 15, 2024 at 12:09 AM -
EndME liked PeterW's post in the thread Animal research for ME.
As if one cue: https://www.nature.com/articles/d41586-024-02010-7 Danny Altmann, an immunologist at Imperial College London, is more...
Jun 15, 2024 at 12:09 AM -
Hutan liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
A few comments, all with the proviso that I understand creating a good questionnaire is challenging. Given that the questionnaire says,...
Jun 15, 2024 at 12:08 AM -
EndME liked Jaybee00's post in the thread Protocol REVERSE-Long COVID-19 With Baricitinib Study (REVERSE-LC).
Here is the after party to the Wes Ely interview—some good comments might be worth a listen. [MEDIA] Also from the main interview it...
Jun 15, 2024 at 12:08 AM -
Peter Trewhitt liked forestglip's post in the thread Anti-SARS-CoV-2 Monoclonal Antibodies for Long COVID (COVID-19) (outSMART-LC).
The linked NIH page seems to say that monoclonal antibodies work on earlier strains, and they're not recommended because they're not as...
Jun 15, 2024 at 12:07 AM -
Peter Trewhitt liked Jaybee00's post in the thread Anti-SARS-CoV-2 Monoclonal Antibodies for Long COVID (COVID-19) (outSMART-LC).
Post copied from the LC in the media thread [MEDIA]
Jun 15, 2024 at 12:06 AM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Good Days and Bad Days in Cancer Fatigue.
I have never asked in detail but my memory of patients on chemotherapy is that they would say 'I can handle it and I know it's worth it...
Jun 15, 2024 at 12:06 AM -
Peter Trewhitt liked Trish's post in the thread Good Days and Bad Days in Cancer Fatigue.
I thought cancer fatigue didn't involve PEM or other ME/CFS symptoms, that it really is the symptom fatigue on its own.
Jun 15, 2024 at 12:05 AM -
Peter Trewhitt liked poetinsf's post in the thread Good Days and Bad Days in Cancer Fatigue.
“On those bad days you feel weak, tired and you have to give in to your body resting,” the princess said. “But on the good days, when...
Jun 15, 2024 at 12:05 AM
