Recent Activity
Activity stream for all registered members at Science for ME.
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RaviHVJ liked Yann04's post in the thread Long Covid Moonshot Initiative.
Axios Article:...
May 21, 2024 at 5:46 PM -
Yann04 replied to the thread Long Covid Moonshot Initiative.
Anyone can share an archive link of this axios article publsihed today? Long COVID may have slipped from the headlines, but a group of...
May 21, 2024 at 5:45 PM -
Peter Trewhitt liked rvallee's post in the thread News from Germany.
Some photos from a protest in Hamburg for International ME day:
May 21, 2024 at 5:43 PM -
Robert 1973 liked RaviHVJ's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
Yeah honestly from the BBC, which is generally very risk-averse and non-confrontational, I thought the article was as good as it...
May 21, 2024 at 5:42 PM -
Peter Trewhitt liked Nightsong's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
You're right, I should've been more careful in how I worded that (especially as someone who has personally experienced the...
May 21, 2024 at 5:42 PM -
Robert 1973 liked RaviHVJ's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
It honestly reminded me a tiny bit of the Prince Andrew interview - you’re delighted if you get a quote like that out of someone as a...
May 21, 2024 at 5:42 PM -
Peter Trewhitt replied to the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
I also used caffeine and sugar to self medicate when still working, but I agree that it is wrong to say ‘many people with ME/CFS’ as we...
May 21, 2024 at 5:42 PM -
Robert 1973 liked RaviHVJ's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
To be fair, them including the quote about ‘anti recovery activists’ is probably more damning than anything they could have written....
May 21, 2024 at 5:41 PM -
Peter Trewhitt liked JemPD's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
I did the reaching for sugar & caffeine one - when i was mild and still working - anything that would get me through the day till i...
May 21, 2024 at 5:37 PM -
Peter Trewhitt liked JemPD's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
err, my ME has been progressively deteriorating for the last 10yrs. Lots of people report progressive deterioration, albeit not the...
May 21, 2024 at 5:37 PM -
Peter Trewhitt liked JemPD's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
I cant do the module (you have to log in as an NHS worker with a 'qualifying NHS email address to do it - But reading on the MEA page...
May 21, 2024 at 5:36 PM -
Yann04 liked Nightsong's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
You're right, I should've been more careful in how I worded that (especially as someone who has personally experienced the...
May 21, 2024 at 5:33 PM -
Peter Trewhitt liked Nightsong's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
Just skimmed through this. There's a lot of good content in this, although I do have a few concerns. I'm not sure why they've described...
May 21, 2024 at 5:26 PM -
Peter Trewhitt liked MEMarge's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
Re youngsters (CYP =children and young people) "The chance of a partial or full recovery is better in children and young people with...
May 21, 2024 at 5:25 PM -
forestglip liked John Mac's post in the thread World Health Organization: Webinars: Post-Exertional Malaise (PEM) and Long Covid, 22 – 24 May 2024.
World Health Organization 22 – 24 May 2024 The Clinical Management and Operations Unit, WHO Health Emergencies Program supports a...
May 21, 2024 at 5:22 PM
