Recent Activity
Activity stream for all registered members at Science for ME.
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Wyva liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Ha ha my letter to the boss perhaps did the trick.... Just received this Dear Sir/Madam, We recognise that our initial outreach for...
Jun 14, 2024 at 8:59 PM -
MelbME liked Wyva's post in the thread Open Medicine Foundation (OMF).
I can't speak for others, but I'm one of those people who feel worse after waking up. However, if the day is going to be a "bad" one, I...
Jun 14, 2024 at 8:59 PM -
Wyva liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I have forwarded my two polite, informative emails that I sent to producer Janet Chute on Tuesday and Thursday to the Head of Television...
Jun 14, 2024 at 8:58 PM -
Wyva liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
BACME have confirmed they are not involved.
Jun 14, 2024 at 8:58 PM -
Wyva liked forestglip's post in the thread USA: NIH National Institutes of Health news - next events May 28 2024.
Walter Koroshetz: "The patients with ME/CFS are incredibly frustrated by the lack of interest by physicians and taking care of them. So...
Jun 14, 2024 at 8:56 PM -
SNT Gatchaman liked forestglip's post in the thread USA: NIH National Institutes of Health news - next events May 28 2024.
Walter Koroshetz: "The patients with ME/CFS are incredibly frustrated by the lack of interest by physicians and taking care of them. So...
Jun 14, 2024 at 8:55 PM -
Wyva liked ringding's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
I raised concerns around HADS and Chalder with the researcher, after having submitted my responses. They acknowledged the limitations...
Jun 14, 2024 at 8:53 PM -
Yann04 liked Wyva's post in the thread USA: The RECOVER Initiative - Long Covid research.
There's even more, menstrual changes, extreme thirst, shortness of breath, balance issues etc, symptoms you can read about even here on...
Jun 14, 2024 at 8:51 PM -
Yann04 liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Strongly agree. Remember too that Margaret Williams is a pseudonym. So unless it’s supported by reliable primary sources it is an...
Jun 14, 2024 at 8:51 PM -
Yann04 liked MrMagoo's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
In Ean’s MEpedia page there’s a good, sourced overview of S Wessely. Including M Williams. I agree the researcher doesn’t need to be...
Jun 14, 2024 at 8:51 PM -
Yann04 liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Sorry Aaron i just not well enough to read/take in all that at the moment so i dont know. But unless it contains actual letters and...
Jun 14, 2024 at 8:51 PM -
Wyva liked Yann04's post in the thread USA: The RECOVER Initiative - Long Covid research.
“Sore throat” and “Chills flushing sweats” not common in ME?
Jun 14, 2024 at 8:51 PM
