Recent Activity
Activity stream for all registered members at Science for ME.
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Amw66 liked Hutan's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
Well yes, and even then 'conceivably' is doing a lot of heavy lifting. As @rvallee would say, the giant spaghetti monster in the sky is...
Jun 15, 2024 at 7:27 AM -
Lou B Lou liked Sean's post in the thread : TV casting call for people living with ME/CFS.
Never existed. Was always nothing more than a sop for public relations purposes. Caused some offence?!? Standard non-apology. It is a...
Jun 15, 2024 at 7:26 AM -
rainy liked Midnattsol's post in the thread Norwegian guidelines in development: help with a literature search.
The stated goal of the new pasientforløp/care pathway is to increase focus on quality of life and coping in the patient population.
Jun 15, 2024 at 7:25 AM -
rainy liked Midnattsol's post in the thread Norwegian guidelines in development: help with a literature search.
Based on the name this is the one where Recovery Norway has been given two positions since they, as recovered, are vulnerable when...
Jun 15, 2024 at 7:24 AM -
Amw66 liked ME/CFS Skeptic's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
It's also a strange thing to study: whether making up an explanation for symptoms makes the patient feel less ill. I assume that the...
Jun 15, 2024 at 7:21 AM -
Amw66 liked NelliePledge's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
As well as FND all psychosomatic efforts are post NICE 21 obviously going into promotion of MUS to reclaim the ground lost.
Jun 15, 2024 at 7:21 AM -
Amw66 liked rvallee's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
https://www.sheffield.ac.uk/scharr/research/centres/ctru/mss3 I don't see a thread on this. The list of contributors imply a very...
Jun 15, 2024 at 7:16 AM -
Amw66 liked Sean's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
What is required is that they are reasonably accurate at recording changes and trends for the individual. It is the variations that seem...
Jun 15, 2024 at 7:15 AM -
Amw66 liked MrMagoo's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
They are more reliable than a 90 question survey asking you to recall activity in the past month
Jun 15, 2024 at 7:15 AM -
Amw66 liked rvallee's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
There is definitely a basis to this. They are not especially accurate, but that much precision isn't really needed, and the problem...
Jun 15, 2024 at 7:15 AM -
Amw66 liked ME/CFS Skeptic's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
The definition seems to be overly inclusive. It does not require any particular symptom, does not require any level of functional...
Jun 15, 2024 at 7:14 AM -
Amw66 liked Sean's post in the thread USA: The RECOVER Initiative - Long Covid research.
Yes, fine words. But we have heard it all before. So let's wait and see how well those promises translate into meaningful productive...
Jun 15, 2024 at 7:11 AM -
Amw66 liked wingate's post in the thread USA: The RECOVER Initiative - Long Covid research.
Please NIH prove me wrong with your actions because the empty talk and 'wait and you'll see how hard we're working!' approach is just...
Jun 15, 2024 at 7:11 AM -
Amw66 liked Wyva's post in the thread USA: The RECOVER Initiative - Long Covid research.
There's even more, menstrual changes, extreme thirst, shortness of breath, balance issues etc, symptoms you can read about even here on...
Jun 15, 2024 at 7:11 AM -
Midnattsol liked Hutan's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
7837 people identified from GP records 891 excluded or not sent a participation pack - mostly due to the GP saying they aren't suitable...
Jun 15, 2024 at 7:04 AM
