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Recent Activity

Activity stream for all registered members at Science for ME.

  1. dave30th replied to the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

    thanks. so in a subjective measure in an unblinded study they achieved the bare minimum that could be conceivably called clinically...

    Jun 15, 2024 at 3:22 AM

  2. Chezboo liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    No problem! I’ll send over the Monblot article and some of the other links and videos that have been contributed. Thanks!

    Jun 15, 2024 at 3:17 AM

  3. Chezboo liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    . https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), 1990s? This documentary...

    Jun 15, 2024 at 3:16 AM

  4. Milo liked forestglip's post in the thread Open Medicine Foundation (OMF).

    "Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...

    Jun 15, 2024 at 3:16 AM

  5. Chezboo liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    I’ve been Tweeting alot about Wessely and his involvement in the Ean Proctor case and last night a BBC journalist and documentary...

    Jun 15, 2024 at 3:14 AM

  6. livinglighter liked Eddie's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    This seems like a reasonable explanation for some of the orthostatic issues that pw ME/CFS face. However, from my own experience I think...

    Jun 15, 2024 at 3:08 AM

  7. livinglighter liked Turtle's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    Van Campen, Visser (2020) found 90% of ME/CFS patients had hypoperfusion during the tilt table test with doppler, not the healthy...

    Jun 15, 2024 at 3:06 AM

  8. livinglighter liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    We have some older studies using near infrared spectroscopy to measure frontal lobe oxygenation, eg with orthostatic or exercise...

    Jun 15, 2024 at 3:05 AM

  9. livinglighter liked Turtle's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    Great finds! 2002, 2004 and 2008 and still a long way to go. Not only in exercise, I think, but who am I? OI (also with normal BP like...

    Jun 15, 2024 at 3:05 AM

  10. wingate liked Hutan's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    I don't know the answer to your question, perhaps someone here will tell us. But, failing that, I think you might be surprised at the...

    Jun 15, 2024 at 2:58 AM

  11. Eddie replied to the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    This seems like a reasonable explanation for some of the orthostatic issues that pw ME/CFS face. However, from my own experience I think...

    Jun 15, 2024 at 2:57 AM

  12. Hutan replied to the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

    7837 people identified from GP records 891 excluded or not sent a participation pack - mostly due to the GP saying they aren't suitable...

    Jun 15, 2024 at 2:57 AM

  13. wingate replied to the thread USA: The RECOVER Initiative - Long Covid research.

    Please NIH prove me wrong with your actions because the empty talk and 'wait and you'll see how hard we're working!' approach is just...

    Jun 15, 2024 at 2:55 AM

  14. livinglighter liked SNT Gatchaman's post in the thread Altered brain perfusion and oxygen levels relate to sleepiness and attention in post-COVID syndrome, 2024, Chien et al..

    Altered brain perfusion and oxygen levels relate to sleepiness and attention in post-COVID syndrome Claudia Chien; Josephine Heine;...

    Jun 15, 2024 at 2:54 AM

  15. forestglip replied to the thread 'Long Covid Research Initiative' and Polybio funded to research viral persistence and antiviral treatments.

    Total-body PET imaging to identify deep-tissue SARS-CoV-2 reservoirs in Long COVID "This study is the first in the world using advanced...

    Jun 15, 2024 at 2:53 AM
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