Recent Activity
Activity stream for all registered members at Science for ME.
-
Holinger liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I recommend not saying that. As Prof W disputes it and says he was not involved. yes IIRC it says he was not involved. I'm not saying...
Jun 15, 2024 at 4:09 AM -
SNT Gatchaman liked Dolphin's post in the thread News from Australia.
Press release: The Australian Government is investing nearly $14.5 million into research to improve our understanding of the impacts of...
Jun 15, 2024 at 4:09 AM -
Sean liked Ravn's post in the thread Open Medicine Foundation (OMF).
Speaking of... the FUNCAP has just been published. Hopefully that makes it more visible to other researchers resulting in more...
Jun 15, 2024 at 3:58 AM -
Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah I'm aware of visible. I think they try estimate capacity in the morning right? Sleep data i think. I'd be looking broad symptom...
Jun 15, 2024 at 3:58 AM -
Sean liked Kitty's post in the thread Open Medicine Foundation (OMF).
Not able to speak for others, but I can't. I may wake up feeling much worse than usual, yet two hours later feel as well as I ever do....
Jun 15, 2024 at 3:58 AM -
Sean liked Wyva's post in the thread Open Medicine Foundation (OMF).
I can't speak for others, but I'm one of those people who feel worse after waking up. However, if the day is going to be a "bad" one, I...
Jun 15, 2024 at 3:58 AM -
Sean liked Trish's post in the thread Open Medicine Foundation (OMF).
Are you aware of or in touch with people researching the Visible app that uses HR and HRV monitoring as well as symptoms and FUNCAP? I'm...
Jun 15, 2024 at 3:58 AM -
Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Thank you, we have made a more concerted effort in the space of developing tools needed to improve research on ME/CFS. I think FUNCAP is...
Jun 15, 2024 at 3:58 AM -
Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah you can track symptoms as many times s you like over the day. I was just using an example in my description of day to day. But...
Jun 15, 2024 at 3:58 AM -
Sean liked Trish's post in the thread Open Medicine Foundation (OMF).
Thanks for the replies. Your work on all this looks important. Are you planning to publish anything soon about your plans for a package...
Jun 15, 2024 at 3:57 AM -
Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah Braincheck but any tests that assess executive function or processing speed are fine.
Jun 15, 2024 at 3:57 AM -
Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes it will be free for others to use once ready for release. We will beta test with patients very soon. Because of it's novelty we are...
Jun 15, 2024 at 3:57 AM -
Sean liked Kitty's post in the thread Open Medicine Foundation (OMF).
In terms of symptoms, @MelbME, it may be useful to have some reference to time of day. I'm not sure quite what (can't think clearly at...
Jun 15, 2024 at 3:57 AM -
Sean liked Trish's post in the thread Open Medicine Foundation (OMF).
@MelbME, are you planning to use any cognitive testing as part of your outcome assessments?
Jun 15, 2024 at 3:56 AM -
Sean liked Trish's post in the thread Open Medicine Foundation (OMF).
I'm liking very much your development of ways to track changes and potential for use as outcome measures. I like the mix of the three...
Jun 15, 2024 at 3:56 AM
