Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Yann04's post in the thread USA: News from Solve ME.
Yes Janet did exaggerate a lot. I think there is still some fair criticism though which is that not all cases of ME are post infectious...
Jun 15, 2024 at 6:10 AM -
Hutan liked Laurie P's post in the thread USA: News from Solve ME.
My concern is that people who would otherwise participate in advocacy and email their Members of Congress may now not do so because of...
Jun 15, 2024 at 6:09 AM -
Hutan liked Yann04's post in the thread USA: News from Solve ME.
I didn’t see anyone calling her out. Just some long covid people agreeing with her because they believe that ME and LC are completely...
Jun 15, 2024 at 6:09 AM -
Missense liked Wits_End's post in the thread Good Days and Bad Days in Cancer Fatigue.
Of course it does - at the home visit for my caree's PIP application, the healthcare professional came in and announced that he was a...
Jun 15, 2024 at 6:07 AM -
Missense liked poetinsf's post in the thread Good Days and Bad Days in Cancer Fatigue.
“On those bad days you feel weak, tired and you have to give in to your body resting,” the princess said. “But on the good days, when...
Jun 15, 2024 at 6:07 AM -
Missense liked Trish's post in the thread Good Days and Bad Days in Cancer Fatigue.
I thought cancer fatigue didn't involve PEM or other ME/CFS symptoms, that it really is the symptom fatigue on its own.
Jun 15, 2024 at 6:07 AM -
Missense liked Jonathan Edwards's post in the thread Good Days and Bad Days in Cancer Fatigue.
I have never asked in detail but my memory of patients on chemotherapy is that they would say 'I can handle it and I know it's worth it...
Jun 15, 2024 at 6:07 AM -
Hutan replied to the thread USA: News from Solve ME.
I'm a bit late to this, but the Solve paper is about getting a home for infection-associated chronic conditions. Of course Long covid...
Jun 15, 2024 at 6:06 AM -
Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Seriously, well done and I hope it’s a useful conversation.
Jun 15, 2024 at 6:05 AM -
Missense liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
:thumbup: I'd be nothing other than polite ;)
Jun 15, 2024 at 6:05 AM -
Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Ok please remember not to threaten their lives, you know how pwME are terrifying and abusive/s
Jun 15, 2024 at 6:04 AM -
Missense liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I hope that it all now disappears re ME. I have offered and the boss (Vinny) has asked Janet to follow up next week.
Jun 15, 2024 at 6:04 AM -
Turtle liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
Ditto here. My first symptoms were orthostatic/autonomic and I was very active. Onset after just having sailed 30NM doing all the rig...
Jun 15, 2024 at 6:04 AM -
Turtle liked Eddie's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
This seems like a reasonable explanation for some of the orthostatic issues that pw ME/CFS face. However, from my own experience I think...
Jun 15, 2024 at 6:04 AM
