Recent Activity
Activity stream for all registered members at Science for ME.
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Missense liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
Who could approach BACME and ask them if they are supporting this ill advised documentary venture that will be so harmful for pwme, and...
Jun 15, 2024 at 6:01 AM -
Missense liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
I think Jenny Wilson may have had it right in the tweet that @Lou B Lou posted—BACME. It's not a patient charity, of course, but the...
Jun 15, 2024 at 6:00 AM -
Missense liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
So which 'major ME charity' is it that's supporting this very ill advised venture? If it's not the MEA or AFME, and I'll bet it's not...
Jun 15, 2024 at 6:00 AM -
Missense liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
thats a relief!
Jun 15, 2024 at 6:00 AM -
Missense liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That's good. So which charity are they talking about?
Jun 15, 2024 at 6:00 AM -
Missense liked Fainbrog's post in the thread : TV casting call for people living with ME/CFS.
They have said it’s not them advising on this. [MEDIA]
Jun 15, 2024 at 6:00 AM -
Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Excellent email @PhysiosforME thank you
Jun 15, 2024 at 5:59 AM -
Missense liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Fantastic, thank you so much, @PhysiosforME
Jun 15, 2024 at 5:59 AM -
Hutan liked ahimsa's post in the thread USA: News from Solve ME.
Webinar from Solve M.E. - Covid Vaccinations: Efficacy, Options, and Special Considerations for Chronic Illness Tuesday, July 2 1 PM...
Jun 15, 2024 at 5:59 AM -
Missense liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.
We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...
Jun 15, 2024 at 5:59 AM -
Sean liked JellyBabyKid's post in the thread Annual reviews for ME/CFS.
I have an annual asthma review and am asked "does your asthma stop you from doing any activities" To which my answer (often said in...
Jun 15, 2024 at 5:59 AM -
Sean liked Dolphin's post in the thread (Baker Institute, Australia) "Funding to advance understanding of the impacts of long Covid" plus POTS and ME/CFS.
https://baker.edu.au/news/institute-news/long-covid-funding Funding to advance understanding of the impacts of long Covid Baker...
Jun 15, 2024 at 5:58 AM -
SNT Gatchaman replied to the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
Ditto here. My first symptoms were orthostatic/autonomic and I was very active. Onset after just having sailed 30NM doing all the rig...
Jun 15, 2024 at 5:58 AM -
Hutan liked Laurie P's post in the thread USA: News from Solve ME.
I have no idea what Janet Dafoe is talking about in her tweets to Solve ME/CFS saying that ME/CFS isn't mentioned. ME/CFS is mentioned....
Jun 15, 2024 at 5:58 AM -
Missense liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That was my worry too. There does seem to be something going badly wrong with the MEA.
Jun 15, 2024 at 5:58 AM
