Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 14, 2024 at 4:39 AM -
bobbler liked Kitty's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...
Jun 14, 2024 at 4:39 AM -
Sean liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Thanks, so the chair says 'a number of comments in the chat saying they were finding wearables 'incredibly unreliable, not recordiing...
Jun 14, 2024 at 4:39 AM -
Sean liked MrMagoo's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
The issues with wearables seems to be that because they’re all different in how they measure, and she doesn’t know the “under the hood”...
Jun 14, 2024 at 4:39 AM -
Trish liked wingate's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
I don't have experience with the kind of chair you're looking for. I do remember seeing that @Grigor has a chair that reclines nearly...
Jun 14, 2024 at 4:38 AM -
Sean liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Well that was useful (not) I tried to open one of the documents and got an access denied response.
Jun 14, 2024 at 4:38 AM -
Sean liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
By email from the workshop organiser Monica Bolton: Dear attendee, Many thanks for attending the Clinical Trial Design in People...
Jun 14, 2024 at 4:38 AM -
Sean liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Also — would anyone be interested in helping me file a FCC complaint against the influencer. I can write up parts and draw up some...
Jun 14, 2024 at 4:37 AM -
Sean liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Some thoughts on the “stated goals” of the study as said in the information sheet (each bullet point in italic is a stated goal — and...
Jun 14, 2024 at 4:37 AM -
Sean liked Lou B Lou's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
How much harm has this meddling woman caused with her unevidenced and fantastical beliefs about ME and the people who have it - Jenny...
Jun 14, 2024 at 4:37 AM -
Trish liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd...
Jun 14, 2024 at 4:37 AM -
Sean liked Lou B Lou's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Wow! Those so called therapists are in the grip of some serious and rather narcissistic delusions about our disease, and about us....
Jun 14, 2024 at 4:37 AM -
Trish liked dave30th's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I haven't yet. I'm trying to absorb Jeannette's blog posts.
Jun 14, 2024 at 4:37 AM
