Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was...
Jun 14, 2024 at 5:44 AM -
Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).
Very good points you raise. The slider isn't set 1-10, it is more like 1-100, so you could describe something at 55 and describe the...
Jun 14, 2024 at 5:44 AM -
Hutan liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 14, 2024 at 5:43 AM -
Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).
It's not the features, it's the way they are tracked. We have the problem of reliability of a symptom experience being accurate based on...
Jun 14, 2024 at 5:43 AM -
Hutan liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 14, 2024 at 5:42 AM -
Hutan liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 14, 2024 at 5:42 AM -
Hutan liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenters too just offering more info and being gently enlightening. As a Paralympian or someone...
Jun 14, 2024 at 5:42 AM -
Hutan liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...
Jun 14, 2024 at 5:41 AM -
Trish liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I remember there was someone on Twitter arguing that medical illnesses should be experimentally induced in medical doctors during...
Jun 14, 2024 at 5:41 AM -
Hutan liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...
Jun 14, 2024 at 5:40 AM -
Hutan liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few...
Jun 14, 2024 at 5:40 AM -
SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were...
Jun 14, 2024 at 5:39 AM -
Hutan liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 14, 2024 at 5:39 AM
