Recent Activity
Activity stream for all registered members at Science for ME.
-
Peter Trewhitt liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
[MEDIA] Tweet: 'Janet Chute emailed me for the names of volunteers. After I explained why it would be dangerous and unethical for...
Jun 15, 2024 at 6:53 AM -
Hutan liked Midnattsol's post in the thread Norwegian guidelines in development: help with a literature search.
Based on the name this is the one where Recovery Norway has been given two positions since they, as recovered, are vulnerable when...
Jun 15, 2024 at 6:52 AM -
Midnattsol replied to the thread News from Scandinavia.
A great article in forskning.no about living with ME today! No psychologisation and mentioning the lack of knowledge about PEM in...
Jun 15, 2024 at 6:52 AM -
Peter Trewhitt liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
It’s terrible if so. I’ve found the following and don’t know whether it’s this and the rehab issue or not - quite insightful to be on...
Jun 15, 2024 at 6:52 AM -
Peter Trewhitt liked Sean's post in the thread USA: The RECOVER Initiative - Long Covid research.
Yes, fine words. But we have heard it all before. So let's wait and see how well those promises translate into meaningful productive...
Jun 15, 2024 at 6:51 AM -
Peter Trewhitt liked wingate's post in the thread USA: The RECOVER Initiative - Long Covid research.
Please NIH prove me wrong with your actions because the empty talk and 'wait and you'll see how hard we're working!' approach is just...
Jun 15, 2024 at 6:51 AM -
Peter Trewhitt liked Wyva's post in the thread USA: The RECOVER Initiative - Long Covid research.
There's even more, menstrual changes, extreme thirst, shortness of breath, balance issues etc, symptoms you can read about even here on...
Jun 15, 2024 at 6:51 AM -
Peter Trewhitt liked Yann04's post in the thread USA: The RECOVER Initiative - Long Covid research.
“Sore throat” and “Chills flushing sweats” not common in ME?
Jun 15, 2024 at 6:51 AM -
Peter Trewhitt liked rvallee's post in the thread USA: The RECOVER Initiative - Long Covid research.
A few more slides I noticed that seem relevant: [IMG] [IMG]
Jun 15, 2024 at 6:51 AM -
Peter Trewhitt liked Dakota15's post in the thread USA: The RECOVER Initiative - Long Covid research.
As I didn’t see the recordings up yet, I shared a short thread on Twitter for any that would like to view in the meantime. This is...
Jun 15, 2024 at 6:51 AM -
Peter Trewhitt liked rvallee's post in the thread USA: The RECOVER Initiative - Long Covid research.
[IMG] The skepticism is unfortunately not only well-deserved, but far lower than it deserves to be. The dumpster fire that was the...
Jun 15, 2024 at 6:50 AM -
Peter Trewhitt liked Kalliope's post in the thread USA: The RECOVER Initiative - Long Covid research.
Trial by Error by David Tuller Betsy Ladyshetz on Problems with NIH's RECOVER Initiative Presentation: Science journalist Betsy...
Jun 15, 2024 at 6:50 AM -
Peter Trewhitt liked Amw66's post in the thread USA: The RECOVER Initiative - Long Covid research.
From X [MEDIA] Fun fact: *all* of the NIH-RECOVER studies involve a component of PEM but none of them involve objective measures of...
Jun 15, 2024 at 6:50 AM -
Peter Trewhitt liked Midnattsol's post in the thread Norwegian guidelines in development: help with a literature search.
The stated goal of the new pasientforløp/care pathway is to increase focus on quality of life and coping in the patient population.
Jun 15, 2024 at 6:49 AM -
Peter Trewhitt liked Midnattsol's post in the thread Norwegian guidelines in development: help with a literature search.
Based on the name this is the one where Recovery Norway has been given two positions since they, as recovered, are vulnerable when...
Jun 15, 2024 at 6:49 AM
