Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Yann04's post in the thread USA: The RECOVER Initiative - Long Covid research.
“Sore throat” and “Chills flushing sweats” not common in ME?
Jun 14, 2024 at 8:03 PM -
Trish liked Dakota15's post in the thread USA: The RECOVER Initiative - Long Covid research.
As I didn’t see the recordings up yet, I shared a short thread on Twitter for any that would like to view in the meantime. This is...
Jun 14, 2024 at 8:03 PM -
rvallee liked Nightsong's post in the thread Norwegian guidelines in development: help with a literature search.
The "search strategies" document from the history of the NICE guideline may be of use:...
Jun 14, 2024 at 8:03 PM -
rvallee liked Jonathan Edwards's post in the thread Norwegian guidelines in development: help with a literature search.
From what you say, @Lena Kjempengren , either these authorities don't have a very clear idea of what they are doing or are asking these...
Jun 14, 2024 at 8:03 PM -
rvallee liked Kitty's post in the thread Norwegian guidelines in development: help with a literature search.
Welcome @Lena Kjempengren! I hope you enjoy it here. The TL;DR is that: 1) ...are very different things and it'd be useful for the...
Jun 14, 2024 at 8:02 PM -
Turtle liked Kitty's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
The analysis sounds like a specific panel: People can opt out of the remaining genetic material being stored for future research, but...
Jun 14, 2024 at 7:59 PM -
Turtle liked Kitty's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
I'd be surprised, specially as it's such a small cohort and there's going to be data from a much bigger one (albeit only adults)...
Jun 14, 2024 at 7:59 PM -
Turtle liked Keela Too's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
It makes me sad that we need to be this cautious about some researchers and institutions. Research shouldn’t be like a game of “got...
Jun 14, 2024 at 7:58 PM -
Joan Crawford replied to the thread Lancet - Medically unexplained symptoms explained.
I think you are correct in that it risks normalising making explanations up and rubber stamping this as OK. A much less energetic...
Jun 14, 2024 at 7:57 PM -
Trish replied to the thread Good Days and Bad Days in Cancer Fatigue.
I thought cancer fatigue didn't involve PEM or other ME/CFS symptoms, that it really is the symptom fatigue on its own.
Jun 14, 2024 at 7:56 PM -
Missense liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
[MEDIA] Tweet: 'Janet Chute emailed me for the names of volunteers. After I explained why it would be dangerous and unethical for...
Jun 14, 2024 at 7:55 PM -
Missense liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That is extremely concerning. I can't imagine the MEA, AfME or MEAction being so stupid. Even if they can find a member with ME/CFS who...
Jun 14, 2024 at 7:55 PM -
Trish liked poetinsf's post in the thread Good Days and Bad Days in Cancer Fatigue.
“On those bad days you feel weak, tired and you have to give in to your body resting,” the princess said. “But on the good days, when...
Jun 14, 2024 at 7:54 PM -
Joan Crawford liked ME/CFS Skeptic's post in the thread Lancet - Medically unexplained symptoms explained.
It's also a strange thing to study: whether making up an explanation for symptoms makes the patient feel less ill. I assume that the...
Jun 14, 2024 at 7:53 PM
