Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 14, 2024 at 11:17 AM -
Kitty liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 14, 2024 at 11:16 AM -
Kitty liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 14, 2024 at 11:16 AM -
Kitty liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That is extremely concerning. I can't imagine the MEA, AfME or MEAction being so stupid. Even if they can find a member with ME/CFS who...
Jun 14, 2024 at 11:14 AM -
Kitty liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
[MEDIA] Tweet: 'Janet Chute emailed me for the names of volunteers. After I explained why it would be dangerous and unethical for...
Jun 14, 2024 at 11:14 AM -
Kitty liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
It’s terrible if so. I’ve found the following and don’t know whether it’s this and the rehab issue or not - quite insightful to be on...
Jun 14, 2024 at 11:14 AM -
Kitty liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Of course that’s true in theory. But I was told that and yet those around me were left to have their own bigoted ideas and reach for the...
Jun 14, 2024 at 11:14 AM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
must have been the next result on the Google search after dyspraxia
Jun 14, 2024 at 11:13 AM -
Kitty liked Arnie Pye's post in the thread : TV casting call for people living with ME/CFS.
I've seen "Chronic Fatigue Syndrome" mentioned in the same sentence as "Anxiety" and "Depression" before. But this is the first time...
Jun 14, 2024 at 11:13 AM -
Kitty liked Yann04's post in the thread Open Immunoadsorption vs. Sham Treatment in Post COVID-19 Patients With Chronic Fatigue Syndrome, Hannover Medical School.
The study actually looks interesting. However a number of times it basically says CFS = chronic fatigue, which I don’t like the sound of.
Jun 14, 2024 at 11:13 AM -
Kitty liked RedFox's post in the thread Open Immunoadsorption vs. Sham Treatment in Post COVID-19 Patients With Chronic Fatigue Syndrome, Hannover Medical School.
Neato. But I tend to avoid attaching myself to any one hypothesis of long Covid, so who knows if it will work.
Jun 14, 2024 at 11:13 AM -
Kitty liked forestglip's post in the thread Open Immunoadsorption vs. Sham Treatment in Post COVID-19 Patients With Chronic Fatigue Syndrome, Hannover Medical School.
This is now recruiting, in Hannover, Germany. "Does blood purification help against severe fatigue in post-COVID? Chronic fatigue...
Jun 14, 2024 at 11:12 AM -
Kitty liked Andy's post in the thread Open Immunoadsorption vs. Sham Treatment in Post COVID-19 Patients With Chronic Fatigue Syndrome, Hannover Medical School.
Study Overview Brief Summary The complex clinical symptoms of post COVID syndrome, especially chronic fatigue, pose a major challenge...
Jun 14, 2024 at 11:12 AM -
Kitty liked wingate's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
I don't have experience with the kind of chair you're looking for. I do remember seeing that @Grigor has a chair that reclines nearly...
Jun 14, 2024 at 11:12 AM -
Trish liked Kitty's post in the thread Annual reviews for ME/CFS.
I agree that would be absolutely ideal, but I don't think it's realistic until we have trained ME nurses. For what it's worth, I've been...
Jun 14, 2024 at 11:12 AM
