Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Snow Leopard's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
It is IgG and it is a substantial subset with antibodies against specific paranodal proteins. In any case, the efficacy is when there...
Jun 14, 2024 at 4:45 AM -
Trish liked forestglip's post in the thread Open Medicine Foundation (OMF).
FUNCAP seems like a pretty good way to measure. (S4ME thread about it) [MEDIA] Very cool about the Activpal! Too bad it looks like...
Jun 14, 2024 at 4:45 AM -
Sean liked Hutan's post in the thread News from Scandinavia.
You can help here: Norwegian guidelines in development: help with a literature search
Jun 14, 2024 at 4:45 AM -
Sean liked Kalliope's post in the thread USA: The RECOVER Initiative - Long Covid research.
Trial by Error by David Tuller Betsy Ladyshetz on Problems with NIH's RECOVER Initiative Presentation: Science journalist Betsy...
Jun 14, 2024 at 4:44 AM -
Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).
Do you mean how they feel? FUNCAP looks the best to use right now because it captures the patients prediction of their functional...
Jun 14, 2024 at 4:44 AM -
Sean liked MrMagoo's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
It’s much better to have a dissociative seizure alone at home, than in a workplace where others can summon medical attention. Obviously....
Jun 14, 2024 at 4:44 AM -
Sean liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
There is an odd part in the paper that talks about how based on this, it may be better to try to make the seizures less bothersome,...
Jun 14, 2024 at 4:43 AM -
Trish liked Ken Turnbull's post in the thread Different kinds of abnormalities of heart rate and blood pressure.
@rvallee , I'm not an expert, but in all the lectures and articles by "proper" autonomic experts, specialised exercise is recommended...
Jun 14, 2024 at 4:43 AM -
Sean liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Indeed and we have it on another level when you have both physical and cognitive energy thresholds and have to calculate how to do what...
Jun 14, 2024 at 4:42 AM -
Sean liked Snow Leopard's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes, I'm a big fan of the 'give money directly to patients' as a control group option.
Jun 14, 2024 at 4:42 AM -
bobbler liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my...
Jun 14, 2024 at 4:42 AM
